Today has been a ridiculously busy day... After getting Adam bathed, dressed and up for the day, our day started with an appointment to Massachusetts General Hospital for a CTscan, which lasted 2 hours... Good news there is Adam's CT scan looked great! His ventricles have decreased in size and everything is well with his shunt! Praise the Lord for good news today. By the time we got to Spaulding Adam had only a few minutes to rest before he had all his therapies back to back. I was exhausted for him. He had troubles in therapies today because his stomach is still very upset. He was given an IV today so that they could give him some IV fluids to help rehydrate him and also help with his left eye to come back to center. He was pretty tired for all this therapies and just had another off day. I believe medication causes Adam's stomach to be upset and I believe it was caused by the general anesthesia. Hopefully by tomorrow it will all be out of his system and his stomach will start to feel better.
After Adam finished with therapies he was given a roommate tonight. We have been so blessed to have made it this far with no roommate, so making the adjustment is hard. Adam's room has become our home and until today it has really been the only place we had our own space. This also limits our time with Adam and I am not comfortable with that. The bright side is, it gives us a chance to really get to know someone. His roommate looks about Adam's age, but other than that I don't know too much about the roommate, he has lots of visitors all the time so I haven't had a chance to really meet anyone. I am looking forward to an opportunity where I can meet the family and get to know Adam's new roommate.
At Spaulding Marilyn Spivak helps to educate families with the resources as to where your next steps might be. I have met with Marilyn several times and today while meeting with her she was trying to help me with choices for our next steps. She explained to me that we were going to be so limited because of the level of care Adam requires. Hearing the words she spoke to me and explaining to me that skilled nursing was at some point going to be in our future, it just deflates me... I had to quickly grab onto hope, and remind myself that God is bigger and He knows our needs and all I have to do is trust Him to follow... He has already marked our path. I pray that God continues to give us hope, joy, and strength for the days to come... only He knows what is to come for Adam. I am believing with all my heart that at any point He can heal Adam and until FULL restoration has been done, we will continue to walk in the way He marks out for us, no matter how difficult it may be. Psalm 25:4-7 "Show me your ways, O Lord, teach me your paths; guide me in your truth and teach me, for you are God my Savior, and my hope is in you all day long. Remember, O Lord, your great mercy and love, for they are from of old. Remember not the sins of my youth and my rebellious ways; according to your love remember me, for you are good, O Lord."
- ► 2012 (38)
- My Man Said A Prayer
- Church, Friends, and Moving Forward In The Journey...
- No Steps Backwards When God Is In Control
- What An Amazing Day!!!
- Miracles Every Day ~ Praising The Lord For Every O...
- Thankful For Friendships
- Humbled By The Journey
- SO EXCITED TO BE TRAVELING THE ROAD TO RECOVERY!!!...
- God Is Strong In Our Weakness
- My Heart Is Full Of Praise
- Praising God For A Fantastic Week
- In Awe Of God's Presence
- A Special Friend
- "All 3 Root's Are Rambling Again!" ~ Debbie Hagan...
- My Man Loves Me
- Continuing To Rejoice, Continuing To Pray, Continu...
- God Truly Preforms Miracles
- Everything Is Beautiful In HIs Time
- Better Than Old, Better Than New!
- God's Hedge Is Around Us
- Our Hope Will Not Perish!
- Thankful For A Good Day
- God Is So Faithful In Hearing Our Prayers
- Family time, Quality time, and God's timing
- Crazy, Busy Day
- Learning To Forgive As Christ Has Forgiven
- Continuing To Pray
- Praising God For Our Blessings and Progress!
- Please Pray For Adam's Surgery Tomorrow.
- Happy New Year!
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- ► 2010 (250)