Monday, January 31, 2011

My Man Said A Prayer

Today has been another awesome day....  When Dr. Chae came by and rounded on Adam this morning he told me he believes that Adam's seizure he had on Saturday was a break through seizure.  He described it to me this way.  Some one like Adam who has been making so much progress in a short amount of time seizes, it signs his brain in rewiring.  He said that this week will be a tell tell sign, he believes Adam will just go leaps and bounds ahead.  So please pray for Adam's continued progress this week.

Since Adam has been progressing so quickly in such a short amount of time, Dr.Chae wants to switch all of Adam's therapists to get a fresh set of eyes on Adam as well as a new team challenging Adam.  I am sad to let Adam's current therapists go, but SO excited for new eyes and new challenges!!!  This is awesome!  Please pray that the transition will go smoothly.  Adam starts with all new therapists on Wednesday.  GO ADAM!

Adam has been on the move today, he was a wheeling man... wheeling himself up and down the hall.  This morning I was trying to get Adam to go forward, it was so awesome... Dan, and another patient Mike, placed their wheelchairs opposite of Adam and encouraged him to go forward... it was so awesome to see Adam to respond to Mike and Dan... Adam did it and he did great!  Thanks guys!

My favorite moment of the day came when I was tucking Adam in this evening... Every night when I tuck him in and before I leave for the night we pray together.  Tonight I asked Adam to pray for us, and he did!!!  His prayer was so clear and I could hear it so well.  It was so awesome to hear my man pray for us for the first time in 8 and half months.  He's incredible, to God be the glory! Colossians 4:2 Devote yourselves to prayer, being watchful and thankful.

I am in awe of what God is doing, and so excited for what is to come... continuing to praise Him for all our blessings.

Sunday, January 30, 2011

Church, Friends, and Moving Forward In The Journey

Today Adam and I attended church online... there are quite a few churches that do live broadcasts of the whole church service, so not only do we get to participate in worship, but we get to hear a great message as well.  Today Adam and I attended Calvary Chapel in Fort Lauderdale, FL.  It was so great, and without even knowing what the service was going to be on, it was on a chapter in Joshua!  In the worship service we were singing the hymn "It Is Well", after the song was over, Adam turned to me and said "it is well". 

Adam has become a popular guy.  He's had quite a few visitors.  We were blessed to have Gary and Holly Parrott come by for a visit.  It was great to visit with them and fellowship together.  Gary really encouraged Adam, and I am so thankful that they took the time to stop by to encourage Adam and to pray with us.  I am so grateful for the friends that God has provided us.  Dan's mom Barb, dad Tom, and his brother Mike all came to check on Adam today.  So sweet, we are so blessed to have made some good relationships here.  The last week or so, Adam and I have been able to meet and get to know quite a few families in our wing.  The patient families are all so great and we all look out for each other.

Adam had a great day! Praise the Lord!  Adam ate all 3 meals today and didn't need any of his tube feeds today!  This is so exciting.  Adam is actually gaining weight!  He is getting stronger every day.  I just love my man.  He was in his wheelchair for most of the day today, and continued to walk his chair backwards down the hall, he also figured out how to turn it around.  I was trying to teach him how to wheel the wheels with his hands to go forward... it's coming!

Thank you all for your sweet prayers and words of encouragement today, Adam and I are so blessed .  Pray for Adam's week coming up, pray for strength, courage, endurance, hope.  Pray for his speech, for his memory.  Pray for his ability to stand and walk, Adam is getting so restless in his chair.  Psalm 18:32 It is God who arms me with strength and makes my way perfect.

We have begun celebrating birthday week!  Adam's birthday is Thursday, and I just want to mention this for those of you who would like to send Adam a birthday card to encourage Adam... I know that would mean a lot to him.  Please by no means feel obligated, please only do this if it is on your heart to do so. 

Saturday, January 29, 2011

No Steps Backwards When God Is In Control

I have been reminding myself that when God is in control, there are no steps backwards.

Adam hit a speed bump today... this morning Adam wasn't making a lot of sense and was somewhat out of it.  Then early this afternoon, Adam had another seizure.  Mackenzie and I were both there so while I helped Adam, Mackenzie ran and got help. The doctor was able to get everything under control quickly, and they loaded Adam with an anti-seizure medication.  Adam was pretty out of it for awhile, but a couple hours after he seized he woke up and seemed to be okay.  He started talking, not all of what he was saying was making sense, not all that he was saying was even words.  The Doctor said it was a good sign that he was talking and responding so quickly.  Hopefully it will only be a short matter of time before he's back to where he was.

The doctor restarted anti-seizure medication in hopes to ward off any further seizure activity and to help make Adam more comfortable.  All these medications make Adam feel out of it, and causes him to be exhausted.  I am praying that this seizure won't be a set back, but a leap ahead in Adam's recovery.  I am hoping that this is a sign of the brain rewiring itself.  Please pray for Adam as his body recovers from this seizure.  The doctors are running a ton of tests to make sure that an infection isn't brewing and to eliminate that as a reason for seizing.  So far Adam's lab work has been perfect... please keep praying for man.  I know and believe that there are NO steps backwards when God is in control.

I also know that God is walking before us every step of the way, so as hard as it was to go through Adam's seizure today, I know that it did not catch God by surprise.  I am trusting that this is all apart of his plan for Adam.  Romans 15:13  May the God of hope fill you with all joy and peace in believing, so that by the power of the Holy Spirit you may abound in hope.  I love this scripture verse, powerfully strong and gives me so much hope.  God reminded us that he has given me hope and peace for the journey.

Please pray for Mackenzie tonight as well, this was the first seizure she witnessed and it shook her up pretty good.  Thankfully Dan's mom was near by and took Mackenzie for a while and did a great job explaining everything to her so that she could understand it. I am so grateful that God has provided such wonderful people on this journey.  He truly provides all we need.  We are continuing to trust and believe in God for all we need, our hope, strength, and rest all comes from God and He alone provides all we need.

Thank you all for praying for my man and my kiddo. 

Friday, January 28, 2011

What An Amazing Day!!!

Deuteronomy 10:17 For the Lord your God is God of gods and Lord of lords, the great God, mighty and awesome.  I am just marveling at God's amazing awesomeness... is awesomeness a word?  If not, oh well, you get the idea!  The last 2 weeks has been the best 2 weeks of my life! 

I heard and saw Adam laugh for the first time!  I was laying with him this morning and talking with him, and in response to what I said he laughed.  I just loved it!  Several times throughout the day he laughed at other comments... Dan made a funny joke tonight and Adam laughed, it has been so great to see those 2 build a unique and sweet friendship.

This morning after I bathed Adam and got him ready for his day, I wheeled him into the hall. He asked me for a ball and when I gave him a ball, Dan and Adam played catch. Dan was trying to teach Adam to throw the ball, and Adam was trying so hard, but he has so much muscle tone he was having a difficult time releasing the ball. Eventually he did it and we were all excited. Dan remembered that all day, the 2 of them are truly helping each other heal.

Adam has been graduated to meals now!!!  As long as he eats 50% of his meal he won't have to have tube feeds.  He is doing awesome!  He ate most of his lunch, but at dinner he didn't eat quite enough so he was given his tube feeds as well... it's coming!  In fact he's been doing so well that they started to crush his medications up and give it to him by mouth rather than through his g-tube.  The goal is to have his g-tube out in a month... GO ADAM!!!

In physical therapy today Adam was able to the Lokomat again.  The machine registers how much Adam does verses the machine.  Adam did the most I have seen him do yet!  At one point, he even told us out loud, that he needed a break! 

Adam had such an amazing day, he was awake all day!  He was a busy body today... trying to wheel himself all over.  He even became feisty at one point and kept unbuckling his seat belt and trying to stand up.  So the nurse had to order Adam a special seat belt for his chair, one that he can't unbuckle.  Adam's progress is amazing, beautiful, and wonderful... I just love that he is aware and awake, what an answer to prayer! God is so good!

Thursday, January 27, 2011

Miracles Every Day ~ Praising The Lord For Every One Of Them

This last 12 days has not only been amazing, but miraculous... and it just keeps getting better and better!  Adam has had another incredible day.  In speech today Adam ate lunch and he ate enough that they determined he didn't need his afternoon tube feed!  Tomorrow Adam starts on 3 meals a day and the dietitian will come up with a meal plan and work with his calories... this is so exciting!!!

In physical therapy, Erin put Adam onto his stomach and when she did that he got up on his knees and hands, then she explained to him that she needed him to relax and lay on his stomach.  He laid on his stomach and asked for me to lay next to him, so I did... when I did, he scooted his head over to me mine and kissed me.  He then continued to talk to me and told me he just wanted me to be next to him.  I love my man!  Later this afternoon, Adam was upset and when I asked him what he needed he said he just needed me... so sweet.

Tonight as I was walking Adam around for our evening stroll, Adam started vocalizing and seemed a little distressed, I asked him if he was okay and he said no, he then went on to say he didn't feel well, when I asked if his stomach hurt he said no, he told me he had a headache and was dizzy.  We got him right back in bed and gave him something for his headache.  I love that he communicates his needs and feelings, what a blessing and a gift this is.

I am so incredibly blessed to be able to witness miracles on an every day basis.  God is so good, he is so faithful.  I am so grateful for this journey, to be able to see God's hand so faithfully throughout it.  He truly never leaves us and it always walking before us. The Lord God Almighty will be with you, just as you say he is.~ Amos  5:14

I wanted to share another praise and blessing, I think I mentioned that Dan (Adam's buddy on the unit) has a difficult time remembering anything that happened recently.  Today when I was in the hall with Adam, Dan reached over and said "Hey Adam, how's my buddy doing"!!!  He remembered Adam!  This is amazing!  Praising God for the miracles that are happening around us too.

Wednesday, January 26, 2011

Thankful For Friendships

Thank you all so much for the sweet comments about Adam's roommate, I will pass along the prayer comments to the family.    


I am rejoicing once again in an awesome day with my man!  Adam and I had some awesome conversations today and every word that comes from his mouth I praise God for.  Today Adam was in his wheelchair and he was trying to unbuckle his seat belt and stand up, when I asked him where he was going the said, "he trying to get out of here."  I asked him where he wanted to go, he said, he wanted to go home with me.  I love my man.  He's doing so awesome!


In speech therapy today he had his first meal!  He had pureed pancakes, eggs, peaches, and orange juice.  He ate 90% of his breakfast meal!  Tomorrow he has one more trial meal, and then after that he will be placed on a meal plan that the dietitian will put together!  I am so excited that Adam's eating real food, I am sure it feels good for him too.  He's been fighting a bacteria infection in his mouth for 5 months now, and the only way to clear it up is by Adam eating again... the infection is starting to clear up and look so much better!  Totally praising God for all that He has done in Adam's healing!


In physical therapy, Erin placed Adam in a harness and I lift that lifted Adam up on his feet that helped hold his weight off his feet.  The lift just help suspend his body weight, while he walked with a walker!  He did amazing.  Sean, the EMT that has transported Adam several times, and that I have blogged about a few times, stopped by while Adam was walking with the walker... it was so awesome for Sean to see how far Adam has come... and it was so nice of Sean to stop by to check on Adam.  


In occupational therapy, Karla couldn't get over how expressive Adam was today... he was, he was so expressive he was making me laugh so hard.  I asked him a question and he shrugged his shoulders at me... it was so funny to see his facial expressions be as they used to... I just love my man.


Romans 15:5-6  May the God who gives endurance and encouragement give you the same attitude of mind toward each other that Christ Jesus had, so that with one mind and one voice you may glorify the God and Father of our Lord Jesus Christ.


Adam was hanging out with Dan again today... I was walking Adam in the halls this afternoon and Dan was in the hall and had his tray table in front of him.  As I was walking Adam past Dan, Adam grabbed onto Dan's tray table and when I stopped he waved at Dan and said Hi.  I was so excited, I said to Dan... see Dan, you are helping Adam heal every day... I haven't seen him do that yet.  I think it helped Dan today too.  Their friendship has been good for both of them.  Truly a special friendship where both encourage each other in ways we may never understand.  I am so grateful for Dan's family as well, they are all so great at encouraging Adam and making an effort to stop in a say hi to him.  Dan's brother Mike has gone out of his way to help our family several times... I am just so grateful for his family in how they have embraced our family.


Well, Boston is being hit again by another snow storm... ugh, I officially have experienced enough snow to last a lifetime.  It doesn't even melt, there is over 6 feet of snow on the sides of the roads... I have no clue where another 10 inches is going to go... this seems like such a long winter.  The great thing about the snow is the girls night it provides.  Mackenzie and I are having a sleep over with Stephanie tonight.  It's so great to hang out with friends and also to be so close to Adam.  

Tuesday, January 25, 2011

Humbled By The Journey

Micah 6:8   He has showed you, O man, what is good. And what does the LORD require of you? To act justly and to love mercy and to walk humbly with your God.

This journey has been so humbling... and today, I am just thanking God for Adam's healing.  Knowing that you all walked this journey with me and know the up's and down's we've had.  You all know that when we have had speed bumps along the way, and in those moments we have experienced deep pains of sorrow and grief.  I am writing all of this because today while I am rejoicing in Adam's healing, I have also been humbled by reflecting back on our journey.  I started reflecting today because Adam's roommate who has been doing so well and was to be discharged early next week, had a massive seizure and was sent to Massachusetts General Hospital... my heart just breaks for the family, just knowing how hard it is to hit these speed bumps.  Please pray for Adam's roommate and his family.

Adam has had a good day today.  In speech today he ate peaches, and tomorrow it looks like he will get to try his first full meal... please pray for Adam's stomach to handle a meal and to settle down again.  He has had an upset stomach again today and they believe it might just be because Adam's digestive system hasn't had to digest real food.   He even told me today that his stomach hurt, so please pray for his stomach to feel better tomorrow. 

In physical therapy today Erin worked with Adam on the parallel bars, Adam stood by himself in the bars and then took a couple steps with assistance from Erin... Please pray for his muscle tone to decrease, he's fighting a lot of tone in his walking capabilities... and it causes him to be so stiff.  Pray that his muscles will relax to work properly.    In occupational therapy, Karla worked with Adam on brushing his teeth and taking of care his daily needs... Adam did great and communicated well.

This evening, Adam's buddy Dan (the patient I shared with you all that has become friends with us) came into the room and chatted with Adam, I thought it was so awesome that he wanted to be in Adam's room and not anywhere else.  Dan's nurse kept coming in asking him if he wanted to leave and he said no he was in the best place for him right now and then asked her to not ask him again... I thought that was so sweet, that Dan wanted to hang out with Adam, Mackenzie, and I.  I love that God provides all that we need, even friends in the most unlikely place. 

Monday, January 24, 2011

SO EXCITED TO BE TRAVELING THE ROAD TO RECOVERY!!!

Stacie, Adam's speech therapist performed the coma recovery scale test again...  he scored 20 out of 23, she said she considers this score showing that Adam has emerged from his coma!!!!  PRAISE THE LORD, no seriously, stop right now and praise the Lord for all these miracles!  I can't stop praising, to say I am in awe of what God is doing and has done is a complete understatement. Exodus 23:25 Worship the LORD your God, and his blessing will be on your food and water. I will take away sickness from among you... How I love my sweet Jesus!!!

The day just got better and better... you know how yesterday I mentioned that Adam was wheeling himself down the hall backwards in his chair, today he figured out how to go forward and was walking his chair forward while he was sitting in it.  In physical therapy Adam got back on the Lokomat robotic machine and walked over a 1/4 mile today!!!  He was pretty tired when he was done, he slept for hours, but it was so awesome to see how incredible he did.

So Adam and I have been have had several huge comversations today... this evening he asked me how did he get to a hospital in Massachusetts and I asked him if he wanted me to tell him the story of all that has happened.  He said yes, and I told him most of the story in 3 parts and slowly... he was having a difficult time hearing the story... he said he can't believe all that happened to him.  Tonight when we were done praying together he told me that he liked it when I pray for him... then I told him I didn't want to go, he lifted the covers for me to climb in next to him and said "you can stay here with me" and then smiled at me.  Oh how I wish I could stay with him, I miss being with him so much.

I love my man so much, he is a miracle.  Please keep praying for his speech, while he's talking great, his speech is slurred and sometimes difficult to understand.  So please keep praying for his healing.  Please keep praying for Adam as he is becoming aware of some of his deficits, and lack of strength, pray that he will not be discouraged, but to keep persevering and having courage to heal.  Please keep praying for Adam's FULL recovery.  His healing has only just begun, please keep praying!

Sunday, January 23, 2011

God Is Strong In Our Weakness

I can't even begin to thank you all for praying for us, supporting us, and walking this journey with us.  Thank you for your faithfulness.

Adam is the talk of his unit, by how much progress he has made in a week, it's unbelievable.

We have had another miraculous day today!  Adam tried climbing out of bed on his own.  He kicked his legs off the side and tried to sit up... he's gaining strength every day and I am continuing to pray that God will give him the strength he needs for each moment.  After watching Adam try to climb out of bed, I asked him if he wanted to get up in his chair and he said yes.  When I got him in his chair, he kept kicking his legs off the leg rests, so I took them off to see what he was going to do... all of the sudden I watched him in his chair take one step at a time move his chair backwards down the hall... I couldn't believe what I was watching, it's truly amazing to see that God is knitting Adam back together and every day God is healing more and more of Adam.  I reminded Adam that God is strong when he is weak, that in this time of God rebuilding Adam's strength, that He will give Adam the strength he needs in each moment.  2 Corinthians 13:9 We are glad whenever we are weak but you are strong;

As Adam is emerging from his coma and waking up, he is becoming more aware of his surroundings.  Tonight when I was tucking him in and saying goodnight, I was talkikng with him and reminded him where he was and why he is here in Boston and he asked to go home with me to North Carolina.  So sweet, and it made me sad to leave.  I just love him so much.  He is still whispering when he is speaking clearly so I lean my ear as close to his mouth as I can so I can hear... he has taken notice that I do this so he started kissing my cheek when I lean in and then he'll whisper what he has to say.  I love it every time he kisses my cheek, he is so sweet.

Thank you all so much for all your prayers, please keep praying for my man's recovery, it's only just begun!  I am so thankful for all that God has done, all that He is doing, and all that is to come.

Saturday, January 22, 2011

My Heart Is Full Of Praise

Quick update since it's so late...

We are rejoicing in another great day!  We had a great day hanging out as a family and spending the day together.  Adam was much more awake today than he was yesterday, so I am praising the Lord for continued progress.  Today Adam was sitting in his chair and I moved him against the wall to let someone else pass him and he grabbed the railing in the hallway and started pushing himself backwards in his chair... it cracked me up to watch him as he wheeled himself down the hall going backwards.

Adam was able to enjoy yogurt, sorbet, and pureed sweet potatoes... I can't even begin to express how wonderful it is to see Adam eating again! He actually fed himself the yogurt for several bites.  I am so proud of him!  What a miraculous and wonderful week we have had, God deserves all the glory, He is worthy of all praise. I can't help but lift my hands up and praise him for all that he has done this week.  Praise the Lord for the healing that is taking place!

I was invited to a Bible study that meets on Saturday nights, through Dr. Chae's church.  It has been so neat to get to know several of the families there and to begin to build relationships, this has been a huge answer to prayer to find fellowship with other believers.  The study is titled "Walking With God Through The Desert"  This was so timely since Adam and I have been going through Joshua and learning about the journey of the Israelites.  Deuteronomy 32:10 In a desert land he found him, in a barren and howling waste. He shielded him and cared for him; he guarded him as the apple of his eye...  What a wonderful description of how God takes care of us when we are in our desert moments.  He shields us, protects, provides for us, and loves us.  He uses our desert moments to teach us to be dependent on Him.  I am just so excited to be a part of this Bible study and to see what God has to teach me!

Friday, January 21, 2011

Praising God For A Fantastic Week

Today has been a sleepy day for all of us... I blame the snow.  We are so over all this snow, rumor has it we're expecting another winter blizzard on Tuesday... ugh.

One good thing about the weather is Mackenzie got a snow day and was able to be with us all day!!! Adam has been pretty tired all day, I think it's because he has been working so hard this week, he's just exhausted.  Even though Adam was tired today, he still worked so hard in his therapies.  In physical therapy Adam did amazing!!!  He was on the walking machine (the one called the Lite Gait), he took several unassisted steps while in the harness!!!   In speech today Adam is enjoying starting on liquids and purees.  I was able to get cleared for feeding Adam today so off to the store Mackenzie and I went and bought Adam some yogurts, sorbet, and other puree foods.  He seemed to really enjoy it tonight.  YAY, he's eating!!!!  His speech therapist Stacie, will be working with him next week to see how he does eating an entire meal, if he tolerates a meal then she will work with the dietitian to come up with a meal plan and work Adam off his tube feeds.  So exciting!!!  In occupational therapy today, Karla worked on getting Adam to stretch and reach forward.  She also worked on getting Adam to look to the right.  

Please keep praying that Adam's tightness in his neck that prevents him from turning his head to the right comfortably... pray that his tightness goes away.   Pray also for his vision, we don't know what his vision is, we won't know until Adam can communicate what he can and can't see.  Please pray that there is no vision problems.  He does know and recognize colors which is awesome, I had two bottles that were exactly the same except the colors, and when I asked him to grab a certain color he grabbed the appropriate color every time!

Mackenzie and I had the privilege of having breakfast with Dr. Chae this morning.  It was so encouraging and fun to talk about what a mighty God we serve and the incredibly miraculous week Adam has had.  Psalm 43:4 Then I will go to the altar of God, to God, my joy and my delight. I will praise you with the lyre, O God, my God. (A lyre is a musical instrument).

Thursday, January 20, 2011

In Awe Of God's Presence

Another busy and exciting day here at Spaulding...

Adam's day started with speech therapy early this morning... he was able to start with trials of puree and liquids.  He did great and tolerated it all perfectly, tomorrow I will get to be trained on feeding him... I am so excited to see him progress towards a normal diet!

In occupational therapy Adam worked on reaching up and towards an object, the goal and purpose was to get to reach as far forward as possible to mimic the beginning steps of what it would feel like to move himself from sitting position to standing.  he did well.  At one point he ended up so close to the edge of the mat that that he reached his hands back and placed them on the edge of the mat and then lifted his body up and tried scooting himself back on the mat all by himself.  He is doing so awesome, please join me in praying that he would build muscle back quickly, he needs strength to do the things I know he really wants to do.  I continue to remind him that God is his strength when he is weak.  In physical therapy, I am so amazed with him getting more and more used to the parallel bars.  Erin has worked with Adam so much to stand and walk on the parallel bars because he is doing so well and making so much progress... she wants to keep pushing him towards walking on his own.  In between walks on the parallel bars, Erin allows Adam to have a break, when he was on break I walked in front of him to encourage him to keep going... he motioned me forward and kissed my cheek... I love my man, how sweet and tender he is... I just love him.

My favorite moment today came as I was tucking him in for the night... every night after I am done getting Adam all ready for bed the 3 of us pray together (Adam, Mackenzie, and myself).  I always ask him to hold my hands and then I grab his hands.  Tonight however when I asked if I could pray with him, he said yes and handed me his hands.  When I finished praying I said Amen, and Adam as clear as can be said Amen... Mackenzie and I were so excited, this was the first she clearly heard him speak.  She has seen him nod his head and when he has spoken she has had a hard time understanding him, but not tonight... she clearly understood him and was elated. 

After we finished praying, I was laying next to Adam in bed just talking with him for a few minutes and I said to Adam "You're my favorite"  (For those of you who don't know I posted about this early on... Adam would tell me multiple times a day that I was his favorite, ever since we were dating he would do this.  Click here to read the post.)  Tonight when I said it to him, he gave me a smile, and said "no, you're my favorite", then leaned over and kissed my forehead 3 times... this will be a moment that I will forever cherish.  My man told me I was his favorite, I just love him so much!

Many of you know I have been reading the book of Joshua with Adam, every time I read I see the parallel between the Israelites and everything they went through, Joshua having to trust in God for every battle, and how all of this relates and parallels to Adam's journey.  I got goose bumps when I read the following passage... Joshua 5:13-15 Now when Joshua was near Jericho, he looked up and saw a man standing in front of him with a drawn sword in his hand. Joshua went up to him and asked, “Are you for us or for our enemies?”  “Neither,” he replied, “but as commander of the army of the Lord I have now come.” Then Joshua fell face down to the ground in reverence, and asked him, “What message does my Lord have for his servant?” The commander of the Lord’s army replied, “Take off your sandals, for the place where you are standing is holy.” And Joshua did so.

I feel that with Adam's miraculous week we've been having and all that has been taking place... I feel like I too am standing on Holy ground... I just feel the presence of God surrounding us.  I may not have had an encounter with the commander of the Lord's army, but I am sure we have experienced an encounter with God as we are seeing His fingerprints all over Adam's brain as it's recovering.  We will continue to trust in Him and have Him guide our steps.  I just am in awe of all that God has done in Adam's journey, all that He is doing, and all that He has planned... it has only just begun.

Wednesday, January 19, 2011

A Special Friend

Rejoicing in another awesome day!!! Thank you for your prayers, Adam passed the swallow test today!!!!!! He starts on puree trials tomorrow and if all goes well for the next week then his diet will be adjusted appropreiately and he will begin on real foods! GO ADAM!!!

This morning I learned how to shower Adam, after his shower, Adam helped get his clothes on and get ready for his day! He is doing so awesome! Please keep praying that Adam will be able to do more activities of daily living like brushing his teeth, getting dressed, and showering, pray that he will be able to do these on his own. In physical therapy today Adam stood again in the parrelell bars and actually walked with assistance inside the bars... he did the length of the bars 3 times... I can't believe how strong he is getting and how much he is doing on his own. God is continuing to show us His miracluous hand throughout Adam's journey.

I couldn't sleep last night I was woken up several times out of excitment to offer praise up to my Savior for all that He has done, all that He is doing, and all the is yet to come. To God be the glory, great things He has done.  I can't help but praise the name of the Lord, because the name of the Lord is a strong tower, and it's HIS strength residing in Adam.  Proverbs 18:10 The name of the LORD is a strong tower; the righteous run to it and are safe.

There is another patient on Adam's floor named Dan, Adam and Dan have become buddies.  Dan talks all day long and I wheel Adam's chair next to Dan's and ask him to talk to Adam.  Today when I did that Dan said to Adam... "nice to see you again, remember me I your buddy Dan"  The miraculous thing about this is Dan has difficultly remembering anything longer than 2 minutes... his memory is getting stronger every day and he is healing.  So I loved that he remembered Adam.  Dan did tell me a couple of days ago "Adam doesn't say much, but he's a really good listener".  I told Dan that by talking to Adam he is helping Adam heal.  I am so grateful for this special friendship and special connection, they both need each other. 

Tuesday, January 18, 2011

"All 3 Root's Are Rambling Again!" ~ Debbie Hagan

After a near 3 hour commute into the hospital this morning due to weather, I walked into Adam's unit and asked the same question I do every morning "how's my man?" His nurse's response was priceless... "oh my gosh, HE'S TALKING... and in sentences!"  I responded  "Are you kidding me?!!!  Sentences?!!!"  She said yes!  She explained to me that he said... "Where am I?"  After she explained where he was he asked "Who are you?"  Adam has an awesome resident Doctor assigned to him, she was off for the weekend so when she returned today I couldn't wait to tell her.  All she could do was say "that's incredible, I can't believe that he's talking"  She later said to me that it's a miracle that he's talking and after getting to know us and seeing this miracle, she said she is starting to see that God is real.  AMEN!!!

1 Corinthians 2:9 "No eye has seen, no ear has heard, no mind has conceived what God has prepared for those who love him"  I can't wait to see what God has in store for Adam and his recovery.  God is so good.

Adam had quite the busy day today, his day started with 3 hours of back to back therapies, then he had two doctors appointments outside of Spaulding.  The first one was a check up CT scan which was great and showed that the hydrocephalus he had a few weeks ago has resolved and his ventricles are back to a normal size.  Then it was off to Dr. Song's office for a check up on Adam's trach to make sure his trach site is healing properly... Dr. Song asked Adam how he was doing and he responded "I'm fine"!  Dr. Song said everything looked great and Adam's breathing is perfect!  He said he wants to see him again in 4 weeks to make sure his granuloma doesn't grow back, so please pray that there will be no regrowth of the granuloma.

OKAY MY PRAYER WARRIORS.... I have another mission for you all... at 11:00am EST tomorrow Wed Jan. 19th. Adam will be doing a Baruim Swallow study test (click the link to read about it).  This test will be used to determine and see how strong or weak Adam's swallow is as well as how well he will be able to manage liquids and puree's.  If he does well, then he will be able to start a liquid diet and work his way up the food chain and off of his tube feeds.  Please pray for his swallow to be strong and for there to show no weakness.  It would be so awesome for Adam to begin to eat real food again.

And since I have you all praying for my man, please continue for Adam's speech to keep coming, pray for his ability to process, pray for Adam to continue to lean on God for his strength and courage.  PRAY FOR HIS FULL RECOVERY... it's coming!!!!  God's fingerprints are all over Adam's brain as He is knitting him back together one neuron at a time!

Monday, January 17, 2011

My Man Loves Me

"Faith is taking the first step even when you don't see the whole staircase."  Martin Luther King, Jr.

"I just want to do God's will. And he's allowed me to go to the mountain. And I've looked over, and I've seen the promised land! I may not get there with you, but I want you to know tonight that we as a people will get to the promised land. "  Martin Luther King, Jr.

Adam didn't have a normal schedule today because it was considered a hospital holiday since it's Martin Luther King Jr. Day.  He only was able to receive 15 minutes of occupational therapy and 10 minutes of physical therapy... so not much.  In physical therapy he stood in the parallel bars again... he is getting stronger!  In occupational therapy today Karla put him back into his wheelchair and she didn't get him all the way towards the back of the chair, Adam tried lifting himself up to scoot himself back!  Please pray that his strength will return quickly so that when he tries to do these things he is able to.  Adam was pretty sleepy most of the day, but I told him today was a good rest day and I think he was just taking advantage.  He took several long naps today, but he's also been working harder and harder every moment.

This evening he woke up for a second wind and so I gave him a haircut and we visited with other patients and their families, and the nurses.  Everyone keeps making comments on how well he is doing and how awesome he looks.  I am in awe of my Lord who, by His hand only has made it possible that Adam is being healed one neuron at a time.  When we got back to his room I was talking to him and he is trying so hard to talk back to me.  He rambles sentences, but at the moment they are not words just yet, every once in a while he responds clearly with words.  Tonight I asked him what my name was and he whispered, "your name is Amy Root"!!!  Praise the Lord, for He is so faithful!  Another awesome and surprising praise is he is saying yes and no for his nurse Kendra.  It's so awesome to see him answer the staff, he's doing so good!

I just love my man so much, he blesses me every day just by the way he looks at me.  He's such an incredible friend, and an amazing husband.  Tonight after I got him all tucked in, I was laying next to him and talking with him, I told him how blessed I am to have such an amazing husband, I told him he deserves every ounce of respect and honor I have... I thanked him for choosing me to be his wife, he lifted his hand, touched my face and said "I love you"... I love him so much, that there are no words to describe it.  How blessed I am that God brought our lives together.  1 Corinthians 13:13 And now these three remain: faith, hope and love. But the greatest of these is love.
Oh how I love this man!

Sunday, January 16, 2011

Continuing To Rejoice, Continuing To Pray, Continuing To Believe

Thank you all so much for your sweet comments, text messages, facebook comments, and emails... you all are such an inspiration and we are so blessed by your encouragement.  As I read them to Adam, I couldn't help but to cry... I was so touched by your sweet words.  Thank you.

Luke 11: 9-10 And I say unto you, "Ask, and it shall be given you; seek, and you shall find; knock, and it shall be opened unto you. For every one that asks receives; and he that seeks finds; and to him that knocks it shall be opened."   We are called to ask God, to seek him, to approach the throne of grace with expectancy of seeing God work through us, in us, and around us.  While I am still rejoicing and giving thanks for the miracles that have taken place, I am also continuing to boldly approach the throne with confidence asking, and seeking God for Adam's FULL restoration... it's coming!!!  I believe it with all my heart!!!  I challenge you to ask God to radically change your prayer life and to teach you how to approach the throne of grace in your prayer time.  Please keep praying for Adam's speech to return, while he is speaking little bits, today he was trying so hard to say more and it still isn't all coming out as words, so please keep praying.  We rejoice in the words we hear, and are praying with confidence for God's healing hand to continue to touch Adam.

Lord, I ask that you continue to guide me in this journey, teaching me to fear You, to seek you with all my heart, and to approach Your throne with confidence and boldness.  I thank You for hearing the cries of my heart and healing Adam one cell, one neuron, one axon at a time.  Oh how I love you.  Thank you for our miracles... thank you for choosing us to be your vessels.  Be with Adam, continuing to give him the courage and strength he needs for this battle, thank you for making him Your mighty warrior.  Amen.
Today was another great day, Adam and I walked this morning and visited with the other patients.  I was telling Adam that by him visiting them he helps them to recover from their injuries too.  Rest is still something extremely important to Adam and his healing... and I am protective of his rest because too much of anything can cause him to digress if he doesn't rest when he's tired. So after our morning walk, around lunch time he went back to sleep for a bit.  When he woke late this afternoon, he got back in his chair and we sat him in the hallway with his bed side table and gave him a medical supply book and he started to flip through and act as if he was reading it.  One nurse came over to Adam and asked him if he found anything good in there and he replied with a no.  Too funny. 

Since he was sitting so well there and had the table in front of him and he was so alert and awake, I have been dying to put a piece of paper and pencil in front of him so I did tonight... he picked up the pencil and moved it around until he was able to hold it and write on the paper.  I showed him how to write his name and he just drew was trying hard to write his name.  I just sat next to him and watched him, at one point he flipped his pencil upside down and erased part of what he drew and even scooted the eraser shavings away... he's amazing.  I love that we are seeing him defy all the odds.

My precious moment with him came when I was getting him ready for bed and tucking him in, I was leaning over his bed and my hair got in my face and he lifted his hand and moved my hair out of the way, then pointed to his lips for a kiss.  I didn't hesitate!  I said how much I loved him and he whispered I love you too. When it came time to say goodnight I said goodnight and he whispered it back... I love my sweet man, he's an incredible miracle and I thank God that he chose me to be Adam's wife, what an honor.

I am still rejoicing and giving God the glory for the miracles that have taken place, and the miracles that have yet to come.  Many of you have commented through out this journey about hearing Chris Tomlin's song "Our God" as being Adam's song for this journey.  All day today I have been singing it.  Our God is healer, awesome in power... Our God, our God.

Saturday, January 15, 2011

God Truly Preforms Miracles

Amy:  Adam can I have a kiss?
Adam nods and leans forward for a kiss
Amy: Thank you
Adam: (in a whisper) You're welcome
Amy:  shocked and stunned by Adam's response jumped and down and then I said I love you
Adam: (in a whisper) I love you too
Amy:  In tears, rejoicing in this miracle

CAN YOU BELIEVE THIS MIRACLE!!!!  HE SPOKE!!!!  MY MAN SPOKE!!! 

As I was crying after Adam spoke, several nurses came over to me wondering what just happened and I told them that Adam spoke, one of the nurses asked Adam a questions and he responded saying yes to her.  Adam talked to one of  the therapists when she asked him a question... it was amazing!!!  I can't even begin to tell you how ecstatic I have been today!  Later when Jack got to the hospital, Adam spoke to his dad as well, when Jack said to hello there, Adam responded back saying hello there... ADAM IS A MIRACLE... and I hope the doctors at UNC who told me he would NEVER speak... I hope they know what a mighty God we serve, because HE is bigger than Adam's brain injury.  WHAT A MIGHTY GOD WE SERVE.

All I can do right now, is lift my hands to the sky and offer praise to my Savior.  What a mighty God I serve... how blessed I am to witness such an incredible miracle.  Today is eight months to the day since Adam's accident, Lord knew I needed a miracle today... I still can't believe I was given such an amazing miracle.

What a mighty God we serve

What a mighty God we serve
The angels bow before Him
Heaven and earth adore Him
What a mighty God we serve.

As if this day couldn't get any better, my mom also flew in today!  I am so happy she is here with us, it was so great to see her today.  Thank you God for such an amazing day today.

Friday, January 14, 2011

Everything Is Beautiful In HIs Time

I am so encouraged and excited for Adam's recovery.  He finally feels good, he's not fighting infections, he's finally able to participate in the rehabilitation process and we are seeing it!!!  Adam had another good day, when I got in this morning I noticed that his eyes were a little red and I asked him if he slept well last night and he responded shaking his head no.  Even though he didn't feel well, he did great in all his therapies.  He started his day with his first session of speech, he did great and even smiled at Stacie when she was making fun of herself and joking around with Adam. 

The exciting moment of the day came in physical therapy today... Adam stood for a couple of seconds holding his own body weight!  Erin was so excited about this that she took Adam over to the parallel bars where Adam was able to place his hands on the bar and help hold himself up!  The best part about this is Adam has already has always had a difficult time pushing his right heal into the ground, his right knee has a difficult time extending... and today he was able to do it by himself for a second!  Adam met all his goals for PT this week, GO ADAM!!!  I am so proud of him.

In occupational therapy Adam and I played a little game of tennis, with a balloon, he did great!  Karla has really been working on helping Adam look to his right and turn his head to the right, today he was moving his head all over, and moving his head to the right really well.  Adam was pretty tired from not sleeping well last night and working so hard today, that he had a difficult session for second session of speech, but he was able to give Stacie some head nods in responses to some of her questions.

Tonight as I was walking Adam for our nightly walk through his unit, Adam was very tired.  He was having a hard time keeping his eyes open every time I stopped so I asked him if he was ready to go to bed and he whispered yes... I asked if he could wait a few more minutes until I could get some help getting him into bed and he whispered yes again!  Of course he didn't repeat it when the nurse was there, but every time he has communicated in a new way he usually does it for me first before anyone else... so it's coming!  I can't believe I got to hear him whisper to me!  I love that man so much!

I am continuing in trusting in God for Adam's recovery, every little bit of healing has been in His timing and any healing to come will be in His timing.  Thank you God that you make everything beautiful, including this journey, beautiful in Your timing.  Ecclesiastes 3:11 He has made everything beautiful in its time.   I can't believe how great Adam has done the last 2 days, keep praying that it keeps up.  Pray against any infections, pray for his health, pray for FULL recovery... it's going to be beautiful in His time.

Thursday, January 13, 2011

Better Than Old, Better Than New!

I am so overwhelmed with joy, I have felt all your prayers all day today!  Adam has had an amazing day and I thank you all for praying for my man!

Adam's day started with a shower!  He was able to wash his face, upper torso, and stomach.  He reached up to help wash his hair!  It is so exciting to see him participate in his daily needs.  After occupational therapy helped wash, him Adam helped Karla get him dressed.  I'm telling you, he gets stronger and stronger every day!   He was pretty sleepy after occupational therapy, I just prayed that he could wake up for the day.  In speech therapy, Adam worked on ice chips, and communication... I just love how hard Stacie works for Adam and advocates for my man.  After talking with her she has agreed to do 2 thirty minute sessions a day with Adam instead of one hour long session.  I think this is a great idea and I think this will be a great change for his therapies.  Right now, Adam only lasts in speech a half hour before he gets bored and gives up... so I am excited to see how this new method will work tomorrow.

The exciting news today happened in physical therapy, Erin signed Adam up to use this machine called the Lokomat.  It's a robotic machine that suspends you in air and the robot harness moves you as the treadmill underneath is going forward.  Below is a picture of the machine... you can't really get a feel for how it works, but I thought I would show the picture anyway.  I could tell Adam really enjoyed it, the machine tells us how much of the work Adam is doing on his own on each side.  He did fantastic!  Erin said she was going to sign him up to use it again soon.  After he walked for 20 minutes which passed his goal that Erin set for him... he was tuckered out.  I am so proud of him.


After Adam rested for about an hour or so,  I took him on our nightly stroll. I pushed his chair up and down the halls on his floor, talking with other patients, nurses, and family members.  Tonight was the most interactive he has been with all the people we bumped into.  Even the staff kept commenting about how great it is to see him so alert and aware.  I just loved our walk.  Half way through our walk we stopped by the kitchen and I filled a cup with with ice and put a spoon in the cup... I reached my arm out towards Adam and he reached to grab the cup from me, then he scooped the spoon which had some ice on it and brought it towards his mouth and fed himself some ice chips.  He's amazing!  GO ADAM!  I think he was thirsty from all the strolling around we did.  I loved that God answered so many of our prayers today by awaking Adam and making him alert.

Adam's dad flew in tonight and it was good to spend some time with Jack.  He kept commenting over and over again, that this was the first visit he has seen that Adam was so alert and awake.  I am so glad he was able to see so much progress.  Adam is truly making some great gains.  Adam has such an amazing team of Doctors, therapists, and his 3 main nurses... we are blessed.

This is the scripture verse I have chosen to pray over Adam.  I ask that God will prepare Adam's mind for action, the action of healing... I pray that we will be able to set our hope fully on our Savior.  1 Peter 1:13 Therefore, preparing your minds for action, and being sober-minded, set your hope fully on the grace that will be brought to you at the revelation of Jesus Christ. I am so thankful and grateful for how far Adam has come.  I am amazed by our God daily, and his miraculous hand, I can't wait to see what's in store.  Please don't ever give up on praying for my man.  The other day when Holly and I were visiting she prayed over Adam and she prayed that he would be better than old and better than new... I just loved that and I started praying that Adam would be better than old, better than new.

Wednesday, January 12, 2011

God's Hedge Is Around Us


"Reckon it nothing but joy... whenever you find yourself hedged in by the various trials, be sure that the testing of your faith leads to power of endurance."  (James 1:2-3 Weymouth)  I want to share with you mine and Adam's devotion today because it's perfect, just like God's timing in delivering it to us...

"God hedges in His own in order to protect them.  Yet often we only see the wrong side of the hedge and therefore misunderstand His actions.  And so it was with Job when he asked, 'Why is life given to a man whole way is hidden, whom God has hedged in?' (Job 3:23).  Satan know the value of that hedge!  He challenged the Lord by saying 'Have you not put a hedge around Job and his household and everything he has?' (Job 1:10)"

In every trial there are narrow shafts of light that shine.  Thorns will not prick you until you lean against them, and not one will touch you without God knowing.  Yours and my life circumstances are known to God.  He sympathizes as no one else can and watches to see if through it all, we will dare to trust Him completely.  I am so grateful to have His hedge around Adam, myself, and Mackenzie.  I know His hedge is around Adam, that's why Adam is still here fighting every day to recover from his injury.  As for me, I believe His hedge has protected Mackenzie and I as well... I am standing firm in Him, He is where my hope comes from.  He has been, continues to be, and will always be my refuge, my strength, my hope, my joy... He knows my sorrows, my struggles, my pain, my frustrations, my heart... and He loves me just the same.

We survived the treacherous storm. 22 inches of snow with 50 mile an our winds is something I don't have to do again.  Walking to the hospital this morning was quite the challenge, and I should have taken a clue when I didn't see anyone else walking either, but I was on a mission... I needed to be with my man.

Today was kind of a hard day, Adam has been fighting some sleepiness this week he was alert and awake this morning and late tonight, but throughout the whole day he would only wake for 5 minutes at a time here and there.  His sleepiness has increased this week, I asked to meet with Dr. Chae tomorrow so I can share my thoughts, concerns, and ideas as to what is causing Adam's change.  Be praying for Adam to continue to lean on God to get the strength he needs to fight this battle he is in.  I still remind him that he is God's mighty warrior and he's in battle, he's got to keep fighting a good fight, he can't give up. 

So overall it was a slow day in therapies.  He did well on the walking machine and was able to get several good steps in.  He got his second shower this morning in occupational therapy and he seemed to enjoy it a bit better this time than last, but still wasn't sure about it.  Adam did great with ice chips throughout the day.  Stacie gave me permission to do ice chips and a lolly pop with Adam, so in his moments of being awake we worked on his swallowing reflex with ice chips, he did great.

Missing my man more than ever tonight...

Tuesday, January 11, 2011

Our Hope Will Not Perish!

Psalm 9:18 But God will never forget the needy; the hope of the afflicted will never perish.

I am really clinging onto the words of this verse today, it is truly only the Lord who knows all the affliction Adam and I have endured and are dealing with... and look, we were given the promise that our hope will not perish!  It's because God is the author of our hope, the giver of hope and he promises that it will not perish... what a blessing and amazing promise to cling to.  God is so good.  I am praising Him for the hope that he has given me this moment.

Today was a rocky start but a strong finish... Adam started his day being very sleepy, he didn't sleep well last night so he was pretty hard to keep awake this morning,  but by this afternoon and evening he was doing awesome!

This morning in speech therapy Adam was able to try licking a Tootsie Pop, we were truly trying to figure out how many licks it would take to get to the middle.  He did great, the purpose was to try to get him to stick his tongue out and he did!  He stuck out his tongue and leaned forward to lick the Tootsie Pop.  He also did the same with the spoon and ice chips, so he did great! 

I am so proud of my man today!!!  He accomplished one of his short term goals for this week and it's only Tuesday!  GO ADAM!!!  Each week, each therapist set goals for that week for Adam to achieve and today in physical therapy he stood in the standing frame for over 30 minutes and stayed awake the whole time, he's amazing!!!  In occupational therapy Adam worked on leaning forward and reaching for an object, he did amazes me every day how hard he works, he was so successful.  The littlest things exhaust Adam to no end, so for him to push himself and work as hard as he does every day for as long as he does, I am amazed and thankful that God is giving Adam the strength that he needs to get through moment by moment.  God is truly sustaining my man.

Well, we are preparing for another blizzard to hit tonight and tomorrow, so please pray for the safety of the staff that cares for Adam as they travel to and from work.  As for Mackenzie and I we are staying close to Spaulding tonight, we are with Jennifer and Stephanie at their apartment about 3 blocks from Spaulding.  This brings so much comfort to me to be so close and not have to worry about the blizzard.  What a blessing it is to be able to be so close.

Monday, January 10, 2011

Thankful For A Good Day

Tonight is a quick update...

I am so grateful to report that Adam has had a great day!  He participated in all his therapy sessions as well as extra games with me.  Today because Adam's stomach is feeling so much better, we wanted to get an idea of how long Adam would last up and about in his wheelchair... he did great, he lasted the longest ever... from 9:30am to 6:00pm (he went back to bed for 45 minutes, and all his therapies he was out of his chair).  It was so awesome to have him up for most of the day, now hopefully he'll be able to sleep well this evening.  After we got him in bed he crashed for about an hour and then woke and and watched the end of Up with Mackenzie.  And then tonight when I was leaving he was trying so hard to tell me something, when I told him he was doing a good job at trying to communicate with me he shook his head no and when I asked if he was trying to talk, he shook his head yes... it's coming!  It's only a matter of time before he'll be speaking!  I am praying so heard for his speech and language.  What a day he's had, praise God for all that Adam is doing!

This afternoon when Adam, Mackenzie, and I went to the cafeteria so that Mackenzie could do her homework and we could get out of the hospital, we ran into Gary, Holly, and their close friend Steve, we had a great time visiting and a time of prayer. "But blessed is the man who trusts in the LORD, whose confidence is in him." Jeremiah 17:7.  I am so thankful to have had this time to pray for the restoration of Gary and Adam.  What a gift it is to pray for others as well as to have my man prayed over.  Thank you to so many of you who have prayed over and for my man.  His progress is evidence of our prayers... thank you just doesn't seem like enough... but it's all I have right now, Thank you!  God is so good!

Sunday, January 9, 2011

God Is So Faithful In Hearing Our Prayers

Thank you all so much for praying for my man, your prayers are being answered once again!!!  His upset stomach seems to be something of the past!  Praise the Lord!!!  He has been fighting his upset stomach for a month now and today he had a normal day and when I asked Adam if he felt good today I got a head nod yes!!!!  I am rejoicing that he is feeling so much better.  I am so excited for therapies tomorrow, now that Adam's feeling better there is no telling the progress he will make.  I am believing and continuing to have hope that Adam will continue to make significant gains in the next few weeks.  Please join me in praying miraculous gains!

When Adam was in his chair today we met Jeff, Stephanie, and Jennifer in the cafeteria and hung out there for a bit... it was so great to have Adam in a social setting and out of his room.  I know that if they would have met before their accidents they would have been great friends, and I think they are building a unique and special friendship now, even through the stares they give each other.  Adam and I continue to pray for those we have met along this journey, Cale and Kathleen, Ben and Katie, Gary and Holly, and now Jeff and Stephanie.  What a blessing it is to partner with so many people in prayer for the recovery our men... Please continue to pray daily for the men listed above, pray for FULL restoration for Adam and these men. Ephesians 6:18 And pray in the Spirit on all occasions with all kinds of prayers and requests. With this in mind, be alert and always keep on praying for all the Lord’s people.

I hope there are a few of you who have been reading through the book of Joshua with Adam and I.  I just love what God is teaching me through this book and I can't wait to see all that is to come.  Every time I ask Adam if he wants me to read he says yes!!!  Before when when I would ask him it was only about 50% of the time... It took forever to get through our last Bible study, he seems to really like the book of Joshua, I don't know about him, but I know that God has brought me great hope and encouragement through this study.  God is so faithful.

Saturday, January 8, 2011

Family time, Quality time, and God's timing

Adam, Mackenzie, and I have had a great day.  After getting him already for his day I got Adam into his wheelchair and we explored the hospital.  Now that he doesn't have a trach we can go out of his room for longer periods of time.  It was too cold and snowy to go outside today so we explored all the conference rooms with the good views and we watched it snow.  Mackenzie set up her little shop in the conference room and we played with her in there for a bit before Adam headed to PT.  In PT Adam did great with his sitting balance and at one point the physical therapist working with him told Adam to not let her push him backwards and she pushed him and he didn't let her push backwards, he pushed forward, into her.  He dd this 3 times!  He is getting stronger and stronger every day.

Most of the day when I was asking him questions he would respond with a head nod, or if he was answering yes he would say "uh huh"... he's becoming more consistent with the yes's and no's.  The hardest part of my day is leaving Adam for the night... I hate leaving him and if he's awake, he is aware that I'm leaving and looks sad or confused and shakes his head no.  Most nights now I say goodnight to him while he's still awake, letting him know that I;m going to stay until he falls asleep and remind him I will be there first thing in the morning... and I don't leave till he falls asleep.  I love that man so much, he truly makes me the happiest girl in the world every day... he works so hard, and keeps making significant gains, it just makes me so happy.

Mackenzie and I have become close to another family, Stephanie and her mom Jennifer,  here at Spaulding... they are from Bermuda.  Stephanie's fiance was in a kite surfing accident 4 weeks before their wedding and was airlifted from Bermuda to Boston in August.  Pray for Jeff's recovery.  We have been so blessed to get to know them and share life together.  Jennifer watched Mackenzie for part of the day today so that she didn't have to spend the whole day at the hospital and this evening watched her so that I could have some quiet time with my man.  This time with Adam was so precious, what a gift.

The last couple of days I have had such an enormous heart of thanksgiving for how far Adam has come and that every day we are seeing changes and advancements in his recovery.  I was talking with Dr. Chae this morning and he was encouraging me and explaining to me the conditions the Israelites were in when they were in the wilderness, not knowing about the fact that Adam and I have been reading through Joshua and rereading the section of the Israelites being delivered from their wilderness... his encouragement was so timely and amazing to me that it was exactly what Adam and I have been reading... Dr. Chae just helped us see a more detailed look and then used his example to encourage us... isn't God amazing, His timing is perfect, even His timing in healing and building Adam... it is and will be perfect.  Psalm 41:3 The Lord will sustain him on his sickbed and restore him from his bed of illness... Amen!!!

Friday, January 7, 2011

Building

Thank you all so much for praying for my man, he seems to be doing much better today.  I was thinking of all the progress he has made while being at Spaulding and I am so grateful that we are here and he has been given this chance to recover.  While we may have had some hard moments, the blessings and progress far out weigh the hard moments.  During my quiet time today I made a list of Adam's progress he has made and how grateful I am for how far he has come.  He is truly such an amazing warrior and fighter, I am so proud of him.

Adam is still adjusting to having a roommate and therefore he didn't sleep well last night, he was a little sleepy today, but fought through it and participated in all his therapies... he did great.  Specific things he needs prayer for is...

In speech: Pray for Adam's sensation to swallow to grow stronger so he can start eating soon.  Pray that he will manage the ice chips well.  Pray for yes and no communication to become consistent.

In physical therapy:  Pray for Adam's tone to decrease, pray for his stand to get stronger and more indepenant.   Pray for his foot drop to continue to heal to a more normal posture.

In occupational therapy:  Pray for more independance when it comes to taking care of himself, pray for the sensation and ability to communicate when he needs to use the restroom.  Pray for strength in his hands and arms.

For his day to day needs: Pray that he will have the strength to change positions while he's in bed.  Pray for joy, strength, courage, peace, comfort, hope, please keep praying for FULL restoration.

When Adam was in surgery on Monday, God reminded me through my quiet time that He is building Adam, not tearing him down, not reconstructing him, but building him.  I loved this thought, because if God's not reconstructing Adam, it means He's building him from the ground up, one neuron, one axon, one cell at a time.  Jeremiah 31:4 I will build you up again, and you, will be rebuilt.

Thursday, January 6, 2011

Crazy, Busy Day

Today has been a ridiculously busy day...  After getting Adam bathed, dressed and up for the day, our day started with an appointment to Massachusetts General Hospital for a CTscan, which lasted 2 hours...  Good news there is Adam's CT scan looked great!  His ventricles have decreased in size and everything is well with his shunt!  Praise the Lord for good news today.  By the time we got to Spaulding Adam had only a few minutes to rest before he had all his therapies back to back.  I was exhausted for him.  He had troubles in therapies today because his stomach is still very upset.  He was given an IV today so that they could give him some IV fluids to help rehydrate him and also help with his left eye to come back to center.  He was pretty tired for all this therapies and just had another off day.  I believe medication causes Adam's stomach to be upset and I believe it was caused by the general anesthesia.  Hopefully by tomorrow it will all be out of his system and his stomach will start to feel better.

After Adam finished with therapies he was given a roommate tonight.  We have been so blessed to have made it this far with no roommate, so making the adjustment is hard.  Adam's room has become our home and until today it has really been the only place we had our own space.  This also limits our time with Adam and I am not comfortable with that.  The bright side is, it gives us a chance to really get to know someone.  His roommate looks about Adam's age, but other than that I don't know too much about the roommate, he has lots of visitors all the time so I haven't had a chance to really meet anyone.  I am looking forward to an opportunity where I can meet the family and get to know Adam's new roommate.

At Spaulding Marilyn Spivak helps to educate families with the resources as to where your next steps might be.  I have met with Marilyn several times and today while meeting with her she was trying to help me with choices for our next steps.  She explained to me that we were going to be so limited because of the level of care Adam requires.  Hearing the words she spoke to me and explaining to me that skilled nursing was at some point going to be in our future, it just deflates me... I had to quickly grab onto hope, and remind myself that God is bigger and He knows our needs and all I have to do is trust Him to follow... He has already marked our path.  I pray that God continues to give us hope, joy, and strength for the days to come... only He knows what is to come for Adam.  I am believing with all my heart that at any point He can heal Adam and until FULL restoration has been done, we will continue to walk in the way He marks out for us, no matter how difficult it may be.  Psalm 25:4-7  "Show me your ways, O Lord, teach me your paths; guide me in your truth and teach me, for you are God my Savior, and my hope is in you all day long. Remember, O Lord, your great mercy and love, for they are from of old. Remember not the sins of my youth and my rebellious ways; according to your love remember me, for you are good, O Lord."

Wednesday, January 5, 2011

Learning To Forgive As Christ Has Forgiven

I truly love how God supplies all that we need, He has so faithfully provided for us through so many of you... thank you all of you for all that you have done to bless our family... I know I say this often, but I truly mean it, God will repay what I cannot, thank you.

Today, Lord knew I needed the joy of a fellow believer, God delivered me Gary and Holly... Gary was discharged from Spaulding on Christmas Eve, but returned today for a follow appointment and therapy.  I had the privilege and honor to have lunch with them in the cafeteria.  The joy that God gave me through the time we spent together has been such a blessing.  I am going to ask you all to pray for me as I asked Gary and Holly to do... pray that I can forgive those who have wronged Adam in his care, pray that God will fill me with his joy and that I would be able to handle myself with grace given from above so that we can be a light amongst so much darkness.  Please join me in continuing to pray for those who care for Adam, this is extremely important.  Pray that the Lord will allow me to see the staff through His eyes, and to love them where they're at.  Pray that I will have compassion.  Pray Ephesians 4:32 for me,  Be kind and compassionate to one another, forgiving each other, just as in Christ God forgave you.  

This is so the cry of my heart, I want to be kind, and compassionate, and I want to forgive as Christ has forgiven me and removed my transgressions as far as the east is from the west.  Lord, you see my heart, you see my pain, my frustrations, my sorrow, and you see my joys.  Lord, I ask that you soften my heart, so that I can be kind, compassionate, and can forgive in the way that You have called me to.  Continue to refine me, so that I can become more like you.  Give me the strength to trust that You are with Adam taking care of his needs at night when I am not there.  Give me joy in my days.  Thank you God for never leaving me, for walking before me, for forgiving me and showing me how to walk with you.  You are so Holy, and sovereign, all knowing, and I praise you that you are omnipresent. Oh how I love you... Amen.

Guess what?!!!  Adam had his first shower since before the accident!  How wonderful to take one more step closer to a normal lifestyle.  Almost 8 months he hasn't showered, don't worry... he's been bathed, just not showered.  It overwhelmed him just because it had been so long since he has showered, and the stimulation from the warm water pouring on him as well as several people in the shower with him to help.  Karla his occupational therapist said she is planning on showering him once a week for the next couple weeks and then increase it as he gets used to it and tolerates it better. After Karla showered Adam she wheeled him up to the sink where he reached forward turned on the water and helped brush his teeth.  It's so great to see him trying to take care of himself.

Adam had an off day today, every time either myself or one of the therapists asked him if he was feeling okay, he would shake his head no.  His stomach was upset all day and he just didn't look well.  He still participated in all his therapies, and communicated with head nods, he even stayed awake for almost the entire day.  My concern is his left eye... it was off again today, wondering... which usually means somethings up with his cerebral spinal fluid (CSF) and his shunt.  Adam goes first thing in the morning for another CT, so please pray that Adam's stomach will start to feel better, and pray that his shunt can manage his CSF and that his CSF will resolve itself.

I don't think I will ever be able to articulate appropriately how grateful I am that I can come to you all and ask you all to pray for me, my man, and my kiddo and you do... you all have been so faithful in your support.  Your letter, care packages, postcards, words of encouragement, text messages, facebook messages, emails, ect... have all meant a great deal to Adam, Mackenzie, and myself,  thank you so much.  You all make each day brighter and easier to get through, thank you.

Tuesday, January 4, 2011

Continuing To Pray

I am so proud of Adam and how hard he is working. I am so blessed to see God's right hand touching Adam daily. He is truly God's mighty warrior! (Judges 6:12) I was asking Stacie Adam's speech therapist about the the difference in numbers on the coma recovery scale... she explained to me that there are 5 levels to determine the level of coma Adam is in, non-responsive, vegetative, minimally conscience, emerging conscientiousness, and emerged. When we first got to Spaulding Adam was considered in a vegetative stage when he scored a 9, so Friday when Stacie gave him the coma recovery scale test and he scored a 17 he is considered to be emerging!!! GO ADAM! The amazing part about speech therapy today was, Stacie was giving Adam some ice chips and she asked him if he wanted more, instead of head nodding or giving a thumbs up he reached over towards Stacie and grabbed the spoon from her hand and took it up to his mouth and fed himself the ice cube! He's doing amazing. Stacie is amazing at how hard she works with Adam and he is finally responding to her, thank you for praying!


In physical therapy Erin worked with Adam on standing, he stood with her almost her whole session... Erin said this is the best stand she has felt like he has done! He played basketball while she was helping him stand. He did awesome! Adam was assigned a new occupational therapist to his team... Karla will be his new occupational therapist, so please join me in praying for Karla to have wisdom in working with Adam. She worked on stretching Adam out as well as reaching forward. I think she is a great addition to Adam's team.

So today I had an appointment outside of the hospital and when I was leaving I saw this poster in the lobby...

I love that I was reminded that God is in control and He does have a plan and part of his plan is having to go through this journey. Psalm 31:14 But I trust in you, O LORD; I say, "You are my God."
Please keep praying for Adam to continue to make progress, please keep praying for the ability to quickly process information, pray for speech, pray for the ability to have drive and alertness. Pray for his muscle tone to get better. Pray for FULL recovery.

Monday, January 3, 2011

Praising God For Our Blessings and Progress!

1 Chronicles 29:13  Now, our God, we give you thanks, and praise your glorious name.
Thank you all for your prayers today!  Adam's surgery went so well and he did so awesome that they even sent him back to Spaulding this afternoon.  Last appointment Adam had with Dr. Song a couple of weeks ago he told me there would only be a 50% chance that he would remove Adam's trach today while he operated on him... and when Adam got out of surgery, the trach was gone!!!  It's so awesome to see him without his trach.  Another total praise was as soon as I was able to see Adam which was about an hour after surgery, he responded to me right away.  He shook his head for yes's and no's and when I asked him to lift his head to adjust his pillow he did!  This is amazing to have these responses right after surgery and having been under general anesthesia.  Praise the Lord for today, he is so mighty to heal!

God continues to remind me that He has given us peace for the journey and grace for the moment.  I continue to count my blessings for all that God has done on this journey.  Thank you all so much for being so faithful in praying for Adam's FULL recovery, and for praying that Adam would continue to make progress, God hears your prayers and they are being answered... please keep joining us in prayer.  We are continuing to trust in God's plan for our family. 

Sunday, January 2, 2011

Please Pray For Adam's Surgery Tomorrow.

I am celebrating the new year, I can't even begin to tell you what an awesome day Adam has had.  A few days ago I mentioned Adam has had a difficult time moving his head to the right, as soon as I walked he looked all the way to the right to see who was coming through the door, as soon as he saw it was me he smiled.  All day Adam was alert and doing all sorts of things, from brushing his teeth to working with me on a puzzle.

I have really been praying that Adam will hold onto the scripture verse Joshua 1:9 Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the LORD your God will be with you wherever you go.”  To trust that God will continue to give him the courage he needs for this journey.  I started reading Adam the book of Joshua to help him see that God is going before him and has given him the courage he needs for this moment.  As I was reading to him he started to vocalize, I asked him if he wanted me to keep reading to him and he said yes, so I kept reading to him, and he started to vocalize louder.  So then I asked him if he wanted me to reread what I had just read and he shook his head yes.  I read the part where the Israelites went from being in the wilderness and crossed the Jordan into the promised land.  I told Adam that just like the Israelites were were given their promise land, Adam will too be given his promise land.  I ended up reading that section to him 3 times and normally Adam will only last a chapter when I am reading, today we read 5 chapters before he was done. 

Adam and I will continue to read through the book of Joshua and I encourage you all to join us as the Isrealites make their way into the promise land and learn to trust in God and not themselves... I am praying that Adam and I will learn to trust in Him fullly and completely for this journey.  I love him so much, and I ask all of you to pray for Adam's courage to trust in God for this whole journey, pray against discouragement.

Tomorrow morning Adam goes in for the operation on his his granuloma.   We will be transferred to the hospital in the morning Adam is scheduled for surgery at 11am, Dr. Song says the surgery will be a few hours, then Adam will be kept there overnight to be monitored and then back at Spaulding Tuesday early afternoon.  Please pray for Dr. Song and all those who will be working with Adam tomorrow, please also pray that this surgery will not have any set backs.  Pray that the recovery will be quick and painless.  Please also continue to pray for Adam's FULL recovery.

I am giving God so much praise and being so grateful for so many miracles, for my hugs and kisses I get from Adam every day, I love my man so much and it's amazing to see how far he has come, I am so excited to see what God is going to do in Adam's recovery this year.

Saturday, January 1, 2011

Happy New Year!

Happy New Year!!!  Welcome to 2011. 

I am so excited for what 2011 is going to bring... Adam is already off to a great start, he's had a great day!  After I got Adam ready for his day and up in his wheelchair I wheeled Adam down to the 3rd floor and we visited another patient that we have become friends with.  Jeff is from Bermuda and was in a kite surfing accident there.  I have become friends with Stephanie, Jeff's fiance, and Jennifer, Stephanie's mom.  So Adam, Mackenzie and I went down to see Jeff, Stephanie, and Jennifer.  It was so great to see Jeff and Adam interact.  Adam and Jeff just kept looking at each other.  After we visited Jeff, we were given permission to go outside!  It was 50 degrees and such a nice day, this was the first day Adam has been outside since October! He loved it!  Later in the day I was given permission and was trained how to use the bike in the therapy gym so since Adam didn't have therapy today I took him to the gym and he was able to use the bike.  He rode the bike for 35 minutes and he did awesome!

This evening my friend Teri Hooper who is in town still from NC came and sat with Adam while Mackenzie and I went over to Stephanie's and Jennifer's for dinner.  It was so nice of Teri to sit with Adam and Mackenzie and I were able to get out for a bit.  We are truly blessed with such great friends.  After getting Adam ready for bed,  Mackenzie and I went with Teri to her sister's house to have another sleep over... it's been so good to see the Hooper's and to meet their family here in the Boston area, what a blessing this has been. 

We are celebrating a great day. Psalm 126:3 The Lord has done great things for us; We are glad.

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