Friday, December 31, 2010

Excited For New Beginnings

I have never been a huge one to celebrate ringing in the new year, but today I have been so excited to put 2010 behind us and I am looking forward to the new year and to see what God has planned for us.  I have such a great feeling about the new year."But one thing I do: Forgetting what is behind and straining toward what is ahead, I press on toward the goal to win the prize for which God has called me heavenward in Christ Jesus"  Philippians 3:13-14.  I pray that Adam and I will be able to keep our eyes on the Lord for this upcoming year and focus on Him, knowing and trusting that He is in control.  I am looking forward to what is to come and trusting in Him for Adam's FULL recovery.

Today we are rejoicing!   Adam had an awesome day!  In speech therapy Stacie repeated the Coma Recovery Scale test and he scored the highest yet... he scored a 17 out of 23, when Adam was first admitted into Spaulding he scored a 9.  He has made HUGE gains, I am so proud of him... GO ADAM!!!  In physical therapy Erin put Adam on the walking machine again and he walked the farthest and fastest yet, he was amazing!  In occupational therapy he followed commands and was able to move his head to the right, the furthest to the right yet!!!  Adam struggles moving his head to look towards the right, and it was awesome to see him work so hard today.  THANK YOU all of you for praying... Adam's C-Diff test came back negative!!!! I am so excited and blessed by all of you.  If it was positive Adam wouldn't have been able to do therapies in the gym or use any gym equipment, so I am so relieved that it was negative, PRAISE the LORD!  I have so much to be thankful for today!

Thursday, December 30, 2010

Busy Day, Thankful That My Savior Sustains

One thing I have learned on this journey is, I never know how my day is going to unfold.  Every day is a new day, every day brings blessings and then some days there are speed bumps. 

This morning when I first got in I noticed Adam's left eye had dropped and was wondering again, I asked the nurse how his night went and she said he slept really well, I mentioned to her that his eye had dropped and was wondering and I was was concerned.  We watched for a couple hours to see how he would do in therapies and see if it would improve as he became active, up, and moving.  He was pretty sleepy, and seemed off to me.  He was scheduled for a recheck CT for tomorrow so I was really watching him to see if hed needed it today or if he could wait till the morning.  Dr. Chae is on vacation this week so the oncall doctor and I spoke and I agreed to send Adam today for a head CT. 

So when the ambulance arrived to transfer us to MGH, I was so grateful to see Sean... I knew Adam would be in great hands and I could relax.  I told Sean that I didn't want to leave MGH until someone looked at the scan.  Last week if we would have done that it would have saved Adam a transfer.  So after Adam's CT, Sean helped me advocate to get the scan read and he and his crew stayed with Adam and I at MGH until we received the reading.  Then it began, the radiologist called neurology, neurology called neurosurgery, and the resident needed to talk to the attending... you get the picture... we waited for a bit.  Finally the neurosurgeon decided that Adam's shunt needed to be adjusted again.  Normally we would have had to go through the emergency room and wait for hours, but the neurosurgeon was kind enough to come to the CT area and adjust Adam's shunt there and send us on our way...  what a blessing to have doctors who moved quickly, and awesome EMT who stayed with us the whole time.  Thanks guys!!!

Please pray for Adam, pray that his brain will start to absorb his cerebral spinal fluid (CSF) so that he won't have to keep relying on shunt adjustments. Adam is still having an upset stomach and today they sent another C-Diff test, they have sent several others and they have come back negative... but today he had an oder that concerns me he might have C-Diff, please pray his test will come back negative.  Please continue to pray for his FULL recovery.

With all of that said, I have good news too... despite how crummy Adam might have felt today, he had an awesome day in therapies.  In speech he was pretty sleepy, but he did great.  We used a PowerPoint presentation, and one of the switches that we have been working with him to use.  Every time he pushed the switch we would change the slide.  He did great.  In physical therapy Adam played catch and passed the ball back to Erin when she asked!  She also played soccer with him and he did great at kicking the ball back to her... he did great.  He missed occupational therapy because of the CT scan.  I am amazed and so proud of Adam for how hard he worked today even when he wasn't feeling his best... GO ADAM!!!

After we got back to Spaulding Adam slept for a couple hours and when he woke up he seemed like he's feeling better.  He was responding to me with head nods... when it came time to leave tonight I was telling him that I had to go and he grabbed my arm and shook his head no.  I told him that visiting hours were over and it was time for me to head home, he shook his head no again.  I told him I would be back first thing in the morning and I asked him if he would dream about me and he shook his head yes... so sweet.  I love my man and he loves me. 

Psalm 3:5  I laid me down and slept; I awaked; for the Lord sustained me.     I am so blessed that God sustains me moment by moment.  I am trusting Him, every night and especially tonight that when I lay down that He will give me rest and when I wake, He will continue to sustain me.  Praise the Lord, He is so faithful in meeting my needs every moment. 

Wednesday, December 29, 2010

Do Not Dwell In The Past

I have posted many times about how important it has been for me to stay in the moment. Over the last couple of weeks, I have learned to realize why it's so important. At first it kept me from thinking about what is to come, and just taking it moment by moment, and that is still extremely important. But even more importantly and what I have just begun to realize is it keeps me from dwelling in the past, it keeps me from wishing for what I once had. Now, let me distinguish for a moment the difference between enjoying the memories and longing for the past... I cherish my memories we shared before Adam's accident and think about them often... but I can't wish to go back there. Things will never be the same, we will never be the same... God has done such a work already in our family and it has only just begun. So when I have those wishful thoughts I have to be quick to take them captive and tear them down, because those thoughts keep me out of this moment, and this moment is the moment we have been given.

There is so much to be thankful for in this moment, if I am focused on the past, I miss out on the blessing this moment has to offer. Lord, keep my obedient to Your will in this moment, help me to keep my eyes on you. May my eyes not stray to the left or right, but stay focused on You and what You have given me in this moment. Thank you Lord, for how far you have brought Adam, thank you Lord for forever changing our lives and pulling us closer to you. Thank you Lord for the lives that You have changed through this journey. Thank you Lord that You never leave me. Thank you for Your word and Your promises. Isaiah 43:18-19 “Forget the former things; do not dwell on the past. See, I am doing a new thing! Now it springs up; do you not perceive it? I am making a way in the wilderness and streams in the wasteland. Thank you Lord, that you are making streams in the wasteland, that You are doing a new thing in Adam's healing... I praise You Lord for all that You have done, all that You are doing, and all that You will do...Thank you Jesus for this journey. Amen.

Adam had another great day! In speech therapy this morning he followed commands 8 out of 10 times perfectly and promptly! The amazing thing in speech today... Adam stayed alert and awake for the whole session, this is the first time he has made it through speech being awake! Go Adam!!! In physical therapy, Erin put Adam in the walking machine and Adam lifted his right foot and kicked it forward! This is the first time in the walking machine where he did 80 percent of the work, usually Erin ends up pushing Adam's legs or holding one back, and today he did awesome, he did so much of the work himself!!! Adam and I play catch a lot, and rarely would give the ball back to me, I would have to really prompt him to open his hands and give me the ball, but today in occupational therapy we were playing catch and he pushed the ball back to me every time I threw the ball at him! I am praising God tonight for Adam's progress.

Becky, Adam's occupational therapist has left Spaulding and Adam hasn't been reassigned an occupational therapist yet, continuity is so important to Adam, please pray that he will be assigned the right therapist for him. One that will challenge him and one that he will respond consistently to. Please keep praying for Adam's FULL recovery.

Mackenzie stayed and played in the snow with the Hooper's, this afternoon Kevin texted me this picture of Mackenzie and Melissa sledding... in case you can't tell, she had a blast!

Tuesday, December 28, 2010

Being My Man's Wife

Tonight is going to be a quick update, I'm tired and stayed up way too late.

Tonight after I got Adam all ready for bed and tucked in, Mackenzie and I were so blessed to be with good friends tonight!  Oh how the Lord knew I needed friends today... The Hooper's, friends from North Carolina are in town visiting for the holidays and invited Mackenzie and I over for a sleep over... so much fun.  I can't even begin to express how wonderful and timely this visit has been.

Adam has had another great day making consistent gains, he amazes me how he just keeps persevering and pushing himself.  He stood with therapists assisting for the longest time yet, he's back to sitting unassisted, he's nodding his head for yes's and no's, he's following commands regularly... he rocks!  Today he was sitting in his wheelchair and had been in his chair for a couple of hours... he started to look over at his bed as if he was ready to get back into bed, then he kicked his foot of the footrest of his chair, but the funny part... he unbuckled his seat belt... he was making me laugh so hard, it's like he was trying to get into bed himself.  I love watching God's healing hand at work! Amazing!

Every day that I am able to be at Adam's side cheering him on is such a gift and a blessing.  Being my man's wife has always been something I take so seriously, and as the days pile onto this journey, my role as his wife has changed a little, but not that much. Before Adam's accident I would cheer him on in whatever work project he was working on, I was his helpmate and did my best to anticipate his needs, my favorite time of the day was when his car would pull into the driveway as he returned from work.  I still cheer him on in whatever he is working on for the day, I do my best to be his helpmate and anticipate his needs, and my favorite time of the day is when we are reunited in the mornings.  Circumstances may have changed, but my man is still my man, and God has equipped me to be his helpmate even in these circumstances.  Ladies, your man is still your man, no matter how long you have been married and no matter the circumstances that you face in your marriage... please cherish him, and ask God to show you and help you to be your man's wife and helpmate.  Build your marriage up and build your man up, don't tear him down.  Proverbs 14:1 The wise woman builds her house, but with her own hands the foolish one tears hers down.  He will give you the guidance you need, he has already equipped you. 

Monday, December 27, 2010

Doing My Best To Trust In God's Plans

Tonight I ask you all to please continue to pray for those who take care of Adam. Visiting hours are pretty strict at Spaulding and I don't get to always be with Adam when I want to... leaving Adam every night is the most difficult part of my day.  I do know that God is with Adam even when I cannot be and there is peace in this truth.  Please pray that God will strengthen those who care for my man and that He would place the right people in Adam's path when he needs them.  I am praying that God will continue to give me the strength to trust in His plans every moment of this journey, even when it is so painful.

2 Samuel 7:28 O Sovereign LORD, you are God! Your words are trustworthy, and you have promised these good things to your servant.

Psalm 31:14  But I trust in you, O LORD; I say, "You are my God."

Psalm 56:3  When I am afraid, I will trust in you.

Psalm 56:4  In God, whose word I praise, in God I trust; I will not be afraid. What can mortal man do to me?

Psalm 111:7  The works of his hands are faithful and just; all his precepts are trustworthy.

Romans 15:13  May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit.

Adam had a great day today, I am so glad to see him feeling so much better!  He participated in all 3 therapies!!!  In speech therapy Stacie was able to get thumbs up, and thumbs down when she asked appropriate questions!  In physical therapy Adam followed all the commands Erin gave him, he even reached for the items she asked him to!  Most of the day when I asked him questions he nodded his head appropriately!  In occupational therapy, Adam used the hand bike, he turns the pedals with his hands to build strength in his arms and hands, he did awesome!  GO ADAM!!!  My favorite part of today I was trying to get Adam to play PacMan and Tetris,  he was so interested and I could see that he was enjoying it!  He only played for a couple of minutes, but it sure was fun!

Trusting and believing that God can and will work all things together for good and He has only just begun His work in Adam's healing.  Thank you for praying for my man, please keep praying for his FULL RECOVERY!

Sunday, December 26, 2010

Praising God For An Awesome Day

I hope you all had a wonderful Christmas.  We had a nice Christmas, both Adam's and my family did a wonderful job of making us feel as if we were with them. 

If any of you have seen, Boston (and the rest of the east coast) is being hit pretty heavy with snow. So we spent the day cuddled up talking, watching movies, taking a nap and just having a peaceful, lazy day. It's been so great to watch the snow fall and to be here with Adam.

I am so happy to share with you all that Adam is feeling so much better and today he is seeming more like himself again.  He's been awake and alert and he even nodded his head for the first time in over a week!  This was so exciting to see, because for the last two weeks, he has been so sick and not feeling well that he has not been responding... and today was such a blessing!  I have been praising the Lord and filled with so much joy that I don't think I'll be able to sleep tonight, I am just so excited!!!  God is bringing forth healing and I am seeing His mighty healing hand touch Adam every day!  Later in the day Adam grabbed my cell phone that was laying on the bed and I asked him if he wanted to talk on the phone and he lifted it right up to his ear... so of course I called Cookie, so she could talk to him and he could be on the phone!  When she was done on the phone she asked Adam to hand me the phone and he took the phone from his ear and lowered it to hand it to me.  I am so proud of him!!! 

Later today I was shaving him and he gave me a strange look, I asked if it hurt and he shook his head no... then I asked if he wanted to look in the mirror when I was done and he shook his head yes, so I showed him my shaving job in the mirror and asked him if I did a good job and he shook his head yes.  Yay, I passed the test!!!  Tonight when I was getting him ready for bed and brushing his teeth, I told him it was his turn to brush his teeth and he took the tooth brush from me and brushed his teeth, I barely had to help him, he did fantastic!!!  GO ADAM!!!  I am so grateful his shunt is draining properly, it really shows that the neurosurgeons adjusted the shunt to the right setting and I am giving praise to God for giving Adam's doctors the wisdom they needed in caring for my man.

This afternoon, I was cuddled up with Adam watching the snow fall out the window giving thanks to God for all that He has done and for allowing us to be safe inside all together as a family, Mackenzie, Adam, and myself.  I had my Bible laying across me and Adam reached for it, he pulled it closer to him and I asked him if he wanted me to continue reading to him (I had read to him earlier) and he shook his head yes.  So I picked up where we had left off and read, when I paused for a break, he reached for my Bible again and started flipping through the pages... he flipped to Psalm 105 and then pointed at it, so I read... Give praise to the Lord, proclaim his name; make known among the nations what he has done. Sing to him, sing praise to him; tell of all his wonderful acts. Glory in his holy name; let the hearts of those who seek the LORD rejoice. Look to the Lord and his strength; seek his face always.  (Psalm 105:1-4).  We read through Psalm 105 and I encourage you to do the same, be encouraged at the wonders of our Savior and how mighty He is.  Seek His face always!  I don't know how much it was just coincidence that Adam flipped to this Psalm and pointed at it, but I know my man is filled with the Holy Spirit and I am believing it is what Adam needed hear.

So as I mentioned before, Boston is being hit hard by a blizzard.  Mackenzie and I are safe and well, I was a little panicked this morning when I was seeing the weather report and was trying to come up with a plan.  I wanted to be near the hospital, preferably walking distance so that I would not have to rely on any transportation to get me to and from Spaulding and I would be close to Adam.  We stay pretty late at the hospital and get in fairly early in the morning, I didn't want to end up being away and getting stuck and I wanted to make smart safe decisions.  In the middle of me trying to figure this all out Adam's parents were watching the our weather from Oregon and wanted to help so they were so gracious to put us up in a hotel near the hospital so that we can get to and from Adam without any problem and still be safe!  What a blessing.  This brought so much peace all day to me, knowing I could watch the blizzard outside and know that we were going to be safe and together and I could still be the one to take care of Adam.  I am still really struggling leaving him after several incidents that have happened, so this just makes me feel so happy.  Adam does so much better when we're all together too.  I LOVE MY MAN SO MUCH!!!
I am counting my many blessings tonight and giving God all the glory.  What an awesome God we serve, and I marvel at the works of His hands.  Praising God for a great day.

I leave you with this... today while we were spending time together we "elfed" ourselves... this has made me laugh all day.


Saturday, December 25, 2010

Merry Christmas

Merry Christmas from the Root's

Friday, December 24, 2010

What A Way To Spend Christmas Eve... Such A Long Day

Psalm 41:3
The LORD will strengthen him on his bed of illness; You will sustain him on his sickbed.
 
Today has been a long day.  This morning started with Dr. Chae ordering a head CT on Adam, because he is leaving for England tomorrow and wanted to be sure everything was explored for Adam because he still isn't quite himself.  All CT's are done a Massachusetts General Hospital, just down the road from Spaulding.  So Mackenzie and I loaded up into the ambulance with Adam for his appointment... Mackenzie was excited to ride in the ambulance for her first time.  (I told her this was the only way she could ride in an ambulance, she could ride as a passenger, not as a patient... I was joking, but there is some truth behind the joke)  Little did she know she would be riding in the ambulance 3 more times today.  Adam's appointment went really fast, we were in and out and back to Spaulding all within an hour. 

By the time Kevin and Sean (the EMT paramedics) helped get Adam into bed, Dr. Chae walked into Adam's room... I knew then it didn't look good.  Like I have always said, no news is good news, if it's bad news you seem to know right away.  So only having been back at Spaulding for 5 minutes and having Dr. Chae walk in, I knew it didn't look good.  Adam's CT scan revealed that he had an increase of hydrocephalus (a build up of CSF in Adam's brain).  Adam's ventricles doubled in size that is now much fluid had built up.  Dr. Chae told me, he needed to send us to Massachusetts General Hospital to have Adam's shunt looked at.  Luckily enough Kevin and Sean hadn't even left Adam's unit yet so they just hung out for a few minutes while the paperwork came through so that they could escort us back to MGH.  The increase fluid was as a result of 1 of 2 possibilities.  Either Adam's shunt was draining enough fluid and would only require a simple adjustment, or his CSF could have been infected causing the shunt to fail and need to be replaced.  So after a series of tests, and close monitoring... it was determined that his shunt just needed to be adjusted and everything else was good!!!  Praise the Lord.  So after 6 and half hours in the ER at MGH we were discharged back to Spaulding for close monitoring for the next 24 hours.

It was really special because having to be transported 4 times today, we were blessed to be escorted by Sean and Kevin throughout the day.  Mackenzie has been so strong through this whole journey and I am truly proud of how she just goes with the flow from moment to moment, especially in the very difficult moments.  So today, Christmas Eve, she just rolled with it even though this is not how she wanted to spend her Christmas Eve.  She didn't say anything about herself, but showed concern for Adam, and for the other kids that were expecting her to play with them down on the pediatric floor.  While we were in the ER at MGH, Sean came back and brought Mackenzie a gift... he then said to her... "I have been doing this job since your dad was 10 years old, and never in all these years have a met such an amazing kid like you."  He said to me that he was so touched by how she handles herself, her maturity, and how she was concerned about others rather than herself.  Wow, what a compliment, I am so proud of her and how she handles herself.  She did amazing today.

 Sean and Mackenzie in the ER at MGH
Kevin, Mackenzie, Sean, and I back at Adam's room at Spaulding tonight

After we got Adam all settled and resting comfortable, Mackenzie and I were invited over to Dr. Chae's home for dinner.  I wasn't sure I was up for it, I just wanted to be with Adam and Spualding has very strict visiting hours that I was worried I wouldn't be able to see him again this evening if I left.  I just had to choose to believe that what ever happens, happens for a reason and I just need to trust.  So off to Dr. Chae's for dinner, and a night of fellowship.  What a blessing this turned out to be.  There were several other people there that Mackenzie and I had met from when we went to Hallelujah night at his church.  It was to fellowship tonight and it was awesome to see Mackenzie play and be a kid.  We had a great time, and I was able to make it back to Spaulding and security escorted me to see Adam and I was able to spend a few minutes before they escorted me out.  Can't wait to get back in the morning,  for now I am trusting and believing that Adam is in God's hands and there is no safer place to be.  Isaiah 58:8  Then your light shall break forth like the morning, Your healing shall spring forth speedily,And your righteousness shall go before you; The glory of the LORD shall be your rear guard.

Thursday, December 23, 2010

Hard Work, Holiday Party, and Healing

Thank you all for praying for us during this holiday season, we can your prayers.  We feel so blessed that you all care so much about Adam and our family to continue praying for us, thank you.

Adam had a pretty good day today, despite not feeling a hundred percent. Adam is a little more sleepy than usual because Dr. Chae increased his seizure medication to give Adam some cushion.  With his rash, sore throat, and some type of an infection (still waiting results), Dr. Chae just wanted to be safe and make sure none of these issues would cause Adam to seize.  With the increase in the seizure medication it causes Adam to be more lethargic.  Hopefully once they figure out the infection, treat it, and when Adam starts to feel better again then the doctors will decrease it.  So even though he was sleepy he did great in therapy today, not quite where he has been but he defiantly gave it his all!  In speech today we were working with the buttons again to try to get Adam to understand that when he pushes the buttons, he gets a response.  He did good, but was pretty sleepy.  In physical therapy today he stood again for almost 20 minutes with the assistance of the physical therapist!  It was the best stand yet that he's done, I am consistently feeling his muscles when he's working them so that I can see how much he's doing and today was the best I have felt his right muscles engage in a stand!!!  Go Adam!!!  Amazing!!!  In occupational therapy, the therapy dog stopped by and helped Adam with his session, Adam did great petting the dog and watching him the whole time, Adam even fed the dog his treats.  I am so proud of how hard Adam works every day, even when he's not feeling the greatest. 

After therapies were finished, the 8th floor had their holiday party.  So Mackenzie and I wheeled Adam down to the holiday party for a little socialization.  Adam was pretty tired since he had just finished therapy, but we stayed for the games and then when it started to be more social Adam was ready for some peace and quiet so we returned to his room.  At least once in the day when Adam is in his chair I can find Mackenzie sitting on his lap in his chair with him all snuggled into him, it's so sweet, and today she was wearing a Christmas tree headband and she put a Santa hat on Adam, it was so funny to see the reactions as I pushed them down the hallway... I do have such a wonderful family and I am so blessed by the time we get to spend together. 

Ephesians 4:16 From him the whole body, joined and held together by every supporting ligament, grows and builds itself up in love, as each part does its work.

Tonight I am marveling at that how awesome of a God we serve to create us and I am praying that as He is knitting Adam back together, Adam's body will be fully restored and built with His love so that each part will be able to do what it was designed to do.  I am praying for patience to rest that everything is in His timing, and I am praying that God will give me what I need to hold onto Him and keep trusting in Him.  I am praying that while I wait, he continues to grow my faith and make me more faithful.  I am praying for miraculous healing to overcome Adam's body, and I know and believe with every fiber of my being that God can miraculously heal Adam, I will trust in His plan for full restoration, but in His timing.  We serve a mighty God who is doing a mighty work in His mighty warrior. 

Wednesday, December 22, 2010

Out Of The Mouth Of A Child

I love my kid... she consistently repeats my words back to me and the always convict me, yet she has no idea, she is just telling me to bring me comfort... I was worried about leaving Adam tonight and she says to me... "Mom, God is bigger than everyone here, and He is with Adam every night when we leave, you just have to trust Him."  So I had to go to the cross and leave my troubles there, because the burden is too heavy and it's not mine to carry, Praise the Lord for His strength, and that He takes the weight from my shoulders and carries me in His hands.  God is bigger, Amen?!!!  Isaiah 12:1 &2 I will trust, and will not be afraid; for the Lord God is my strength and my song. 

Adam's week has been so up and down...  as soon as I think we are out of the woods with an infection, something else starts. Adam has a mysterious rash, the marked it with a Sharpie so we could watch how quickly it is spreading.  It is not from any medications, because he is not on anything new and no changes have been made, no soaps or detergents have been changed, so Dr. Chae ordered a consult from a dermatologist who came by this evening.  She took some cultures of his rash and we will hopefully hear the preliminary results in by Saturday and the full results by Tuesday.  His white blood cell count was up today too, so the doctors are working on finding what they believe is an infection brewing.  After talking with the infectious disease doctor tonight, they will most likely be removing Adam's mid-line.  This is to make sure it's not infected or causing infection.  Please pray for Adam's overall health, pray that he will feel better, and be able to continue upward and forward on the path of recovery.

My heart is heavy tonight, and I ask all of you to pray for Gene, he is one of the nurses aides that works with Adam just about every night.  (He's one of my favorites, because he works so hard and always takes good care of my man).  Tonight while on his shift, he found out his mother passed away, he was very close to his mother and even though she lived in Haiti, he supported her and took care of her.  You can imagine, how upset he was.  I went downstairs because I had to go to the reception desk for something and he was downstairs wailing, I went up to him, not knowing yet what had happened, and I just put my arms around him and held him, it's the only thing I could think of when I see this big guy in his 40's just wailing.  He was screaming, my momma, my momma, I just talked to her.  There was no words that could comfort so as I held him, I just cried with him. 

After someone came down to take care of Gene, I silently walked away, sobbing, not just for Gene's grief, but because I was reminded how close I was to loosing my man several months ago and how blessed I am that he is still here fighting every day to recover, grateful and praising God that I was given so many more days with my amazing man.  While I am so thankful that Adam is still here and still persevering... it doesn't mean I don't experience feelings of grief, sadness, and severe pain... oh how my heart physically hurts and aches every day.  Grief is so hard to go through and very difficult to watch someone experience it.  Watching Gene experience grief just made my heart hurt for his.  Please pray for him in the days to come, he leaves for Haiti in the morning.  Matthew 5:4 says Blessed are those who mourn for they will be comforted.

Tuesday, December 21, 2010

Finally Back On Track

Adam had a much better day today and seems like he is finally back on the track to healing!  He was taken off contact precautions because his stomach is no longer showing signs of being upset.  He participated in all of his therapies today and did great!  In speech Stacie is trying to teach Adam how to use his new special call button to call a nurse into the room.  Please pray that he will get the hang of this and understand how it works.  In physical therapy, Erin assisted Adam in standing, he stood for 20 minutes with Erin!!!  While he was standing, Mackenzie held a basketball hoop and Adam put the ball in the hoop 5 times!!!  He was having so much fun playing, and we were all cheering him on.  It was so great that Mackenzie was able to participate as well.

In occupational therapy, Becky worked on Adam standing as well, on the second stand up, Becky was trying to get Adam to stand and he wanted nothing to do with it, so he sat back down fast and hard, knocking Becky to the side, then he turned his head toward her and smiled... this made me laugh so hard.  I love my man's sense of humor, and when he has his mind made up about something, he goes for it... this was too funny.  Becky also told me today that she put in her notice, which I am so sad about, she will be a great loss for Spaulding.  Please pray that God will prepare the therapist who will be taking her spot and pray for Adam to adjust quickly to the change ahead.

Adam's ATEC appointment was cancelled today and will be rescheduled for a later date.  This was the appointment that was going to help us find ways for Adam to communicate with us.  Hopefully this will allow more time for Adam to progress further and to optimize that appointment time. 

The Boston Bruins is a NHL team hear in Boston, a couple of the players stopped by on the pediatric floor today and since Mackenzie is included in all the events, she was able to go and meet the players... she got their autographs and had fun meeting the Bruins.

Overall it's been a good day, I am excited to see what this week brings.  I am believing and trusting that God is healing Adam and knitting him back together one neuron at a time from the inside out.  Adam continues to be my hero, he pushes himself every day and every day he is getting better and better.  I love that he hasn't given up, and that he keeps persevering through such difficult challenges.  Psalm 16:8 I have set the Lord continually before me; because He is at my right hand, I shall not be moved. Adam is the strongest man I know, and I believe it's evidence that the Lord is continually before him, praise the Lord.  Please keep praying specifically for his alertness, awareness, and drive so that he can keep emerging from this coma.

Monday, December 20, 2010

Some Healing is Spontaneous and Some Healing Is Gradual... but Healing Is Happening!

Adam started his day seeming like he was out of it, but as the day went on he seemed better.  Adam is on contact precautions until some tests come back helping to determine how to help Adam feel better.  So to be on the safe side they put him on contact precautions which means wasn't able to do therapies in the gym today.  Hopefully by tomorrow we should have his tests results back and be back to doing therapies in the gym tomorrow.  Adam had a great physical therapy session, his ankles are getting stronger every day and his foot drop is improving so much.  Erin did a stand with him and he had the best posture yet!  In occupational therapy Becky worked with Adam on getting dressed.  He is helping so much!  I love watching miracles happen every day.
Mark 8:23-25 He took the blind man by the hand and led him outside the village. When he had spit on the man’s eyes and put his hands on him, Jesus asked, “Do you see anything?”

He looked up and said, “I see people; they look like trees walking around.” Once more Jesus put his hands on the man’s eyes. Then his eyes were opened, his sight was restored, and he saw everything clearly.    After reading this scripture verse I was reminded that some healing happens spontaneous and some healing is gradual and takes time.  I know that God could have healed Adam yesterday, or even this very moment... what I loved about this scripture is the reminder that some healing takes time, it happens in steps... and I will continue to pray for Adam's miracle and full restoration, but I will also remain patient and trust in God's plan and His timing.

Please pray for Adam's health to be restored.  Pray for his communication skills, so that we can establish a yes and no response.  Please pray for his speech test tomorrow, this is an appointment where Stacie is working on finding the right technology to help Adam communicate with us.  Pray for the staff that takes care of Adam, that they would be attentive and proactive of his needs.  Pray for full restoration.

I am exhausted tonight and after a miserable drive home in the snow, I am heading to bed. 

Sunday, December 19, 2010

Praying For God's Peace and Comfort

Today we spent the day with Adam.  It was a nice day to be in the hospital next to him, and there was nowhere else I wanted to be expect there with him. 

Adam had physical therapy today because with next weekend being a holiday weekend and a lot of people off, they wanted to make sure Adam still got his 6 days of therapy in this week.  It was a very short session, but I am grateful for the fact of him receiving therapy today.  The therapist that worked with Adam today worked on his sitting balance, he is doing so well sitting on his own!  He can usually sit up to 4 or 5 minutes with no assistance!  The therapist also stood Adam up and Adam had great posture and was able to hold his upper body well on his own.  The therapists who worked with him only had to hold his legs and hips up... he is getting stronger every day!  I am so proud of my man.

Please join me in prayer for Adam, his white blood count showed a slight elevation today, which usually means infection... but the doctor also said a slight elevation can be caused by stress as well, but just to be sure he ordered a bunch of tests to rule out any infections... please pray that there is no infection to be found and pray that it wasn't caused by stress either... I would hate to think of Adam being stressed out, but with him not being cared for yesterday the way he should have been, that could have caused stress on him... which is why I won't be comfortable leaving him for awhile.  I am praying that God will give both of us peace when we are not with each other.  I know Adam is more relaxed and does better when I'm around and I too am more relaxed and function better when I am the one caring for him... but at night when we are separated for rest, I am praying that we will both be comforted by God's peace.  I am casting my burdens on Christ and trusting that He will sustain me.  Psalm 55:22

Mackenzie and I have so enjoyed Debbie and Diana being here for the weekend, our time with them went by way too fast.  Pray for their travels tomorrow as they travel back home.

Saturday, December 18, 2010

Trusting That God Is With Adam

This afternoon, after Adam finished therapies, Debbie, Diana, Mackenzie, and myself headed out and went ice skating at the Charles Hotel in Cambridge in Harvard Square, we went to the Harvard Bookstore, and to dinner, then headed back to the hospital. We had a good time and we created some wonderful memories.

Mackenzie and Diana outside Spaulding by the Charles River

 
Debbie and Diana having fun ice skating!

Debbie and I posing as ice skaters!

 
Um Debbie... I think those are for the little kiddos

We were walking in Harvard Square and ran into this guy who was dressed as a Christmas tree or some sort of Christmas decoration... how is this not funny?!!!

Mackenzie and Diana found their own little skating rink!

Look carefully... while riding the train this evening we saw this guy, yes he is wearing his wreath... ahhh joys of living in a city, you just never know what you'll see.

Psalm 118:6-9 The Lord is with me; I will not be afraid. What can mere mortals do to me? The Lord is with me; he is my helper. I look in triumph on my enemies. It is better to take refuge in the Lord than to trust in humans. It is better to take refuge in the Lord than to trust in princes.


Tonight I am really working hard on trusting that God is with Adam even when I am not and I am taking refuge in the Lord, for He is my helper and Adam's.  I beg you all to stop reading right now and say a prayer for all those who take care of Adam.  Pray for the nurses, doctors, nursing assistants, therapists, residents, students, dietitians, respiratory care... everyone who is involved with touching Adam and taking care of him.  Pray that they will do their jobs efficiently and that God will give them the strength and wisdom to do their jobs and do them well.  Please pray for them.  Adam is fully dependant on them doing their job efficiently and well and when they dont' he suffers, so please pray for them... I hate it when I have had to watch him suffer and it makes me feel like I cannot leave him, and after an incident tonight I am feeling that way.  There has been so many times when I feel that Adam is neglected when I am not there and I felt that way this evening.  He deserves the best I will do whatever it takes to get him what he deserves.  I am trusting that God is with Adam when I am not, please pray for Adam, Mackenzie, and myself as we are trying to figure all of this out.  Until I am comfortable leaving Adam again, we will be at the hospital, because that is where I am most comfortable and when I am comfortable Mackenzie is too.

Adam did well today in occupational therapy, he followed commands so wonderfully!  He was able to place a basketball in the basket multiple times!  He joined Debbie, Diana, Mackenzie, and I for a game of Apples to Apples... I placed the cards in his hands and when he was awake I made him pick a card... he did great!  We had a blast.  He is feeling so much better today than he has been so thank you all for praying, I am really praying that by the time Monday comes, he'll be back to making huge gains, and feeling like himself again... please pray that he will sleep well tonight and that while he is sleeping healing is taking place.

Friday, December 17, 2010

Time In His Word

I am sure many of you have had an experience similar to mine today... as I have mentioned before I grab time in the Word when I am able to have a free moment.  Today my time may have been brief, but oh my goodness was it rich!  God wrote something directly on my heart, I will share in due time, but I don't believe tonight is the night to share it.  I am just so excited about it I couldn't contain it, I love the Word of God!  My point of sharing this little piece is this... I know life can be busy and you don't feel as though you have time to sit and read, but I encourage you to seek God in your down moments, even if you are crazy tired, open the Word, remember it's the living word so it will keep you awake.  Ask God to write something on your heart from His word, oh how I pray for you to experience God writing a love note to you on your heart!  It's not about how much time we spend, but it's about what our motives are and where our heart is that matters.   I know the holidays can be crazy and busy, but I plead with you, please, please open the Word at least for a couple of minutes during your day, and be blessed by what God wants to write on your heart, I am giving him thanks already for what He is going to write!

Mackenzie and I are so excited tonight... Debbie, my best friend, and her daughter Diana who is also 10 years old flew into Boston tonight from North Carolina! It's been so great to see them and spend time with them. I am truly counting my blessings tonight, I am so thankful for my friends and all of you who have faithfully supported us on this journey.


Adam is finally starting to feel better.  He did great today in therapies!  In speech therapy, we are still trying to establish yes's and no's, today we worked with the buttons and switches again.  Adam is working so and I am so proud of him.  He goes in on Tuesday for a special test that will help us determine some more modalities and hopefully help us find ways that will be easier for him to communicate with us for now.   Please be praying for this upcoming appointment that we will be able to find the right modality that will work for him.  In physical therapy, Adam did awesome again in the walking machine, he is initiating so much more movements and pushing through his steps, this was so awesome to see considering he has lost 6 pounds this week due to his upset stomach issues. So for him to feel weak and tired and still work as hard has he has and as hard as he did today, I am truly amazed at his ability to persevere!  GO ADAM!!!  In occupational therapy, Adam stayed in his room instead of going to the gym, Becky worked with him on following commands, which he did pretty good and also worked with his sitting balance.  Adam is getting stronger and stronger every day!

Please pray for Adam's weekend to produce restful healing, pray for his upcoming week that he will be able to jump leaps and bounds ahead of where he is now.  Pray for him to continue to be courageous, and for his perseverance.  Pray for his physical strength to return, as well as for him to gain some weight back.  Pray for new miracles every day.

I was reflecting today how lucky I am that I get to stand by my man every day and cheer him on.  This is not something I take for granted, but every day it's something I give God thanks for.  I am so thankful that my man is still here and that Adam chose me and I am the one that gets to cheer him on!  I love him so much and I am so blessed.  I know that many of you are going through difficulties in your own lives, I encourage you to look for the blessings in your circumstance, I guarantee there are blessings. 

Thursday, December 16, 2010

Celebrating A Better Day

I am pretty tired tonight so it's going to be a quick update.

Celebrating a much better day today!  In physical therapy Adam followed 10 out 10 commands today!  In occupational therapy Adam played with a balloon and a ball, it was so great to see him participate today! Go Adam!   He's still not feeling 100%, so Dr. Chae is going to keep Adam on IV fluids for a couple days.  I think Adam is fighting a sore throat, so if he is not feeling well, staying on top of the fluids is important and I am so grateful that Dr. Chae is being so proactive.   Please keep praying for my man's health and recovery. 

Thank you for your prayers, God hears you.  I am trusting and believing that God will strengthen Adam's immune system and he will be able to overcome his health issues as well as his injury.  1 Corinthians 15:57 But thanks be to God, who gives us the victory through our Lord Jesus Christ.  I am asking for victory over all of this, and believing in His promises and in His word, giving thanks for how far He has brought Adam.  Praising him that I still get to be with my man, I love him so much.

Wednesday, December 15, 2010

Kiss Me Like You Mean It

7 months ago today was Adam's accident, the memories I have from the week before Adam's accident are precious and ones that I cherish and hold onto every day of this journey.  One of my special memories, Adam and I were listening to the radio broadcast Focus on the Family and the author of the book "Kiss Me Like You Mean It" shared the importance of kissing your spouse differently that anyone else.  So for the week leading up to Adam's accident, he took this seriously and kiss me so passionately and often.  It was never done jokingly, but always fun, yet sincere and genuine.  I just see this as one more way God prepared us for this journey, God knew it was going to be a long time, 6 months, before I received a  kiss from Adam.  God is truly walking every step of this journey before us.  Please I encourage all of you who are married to listen to this broadcast.



Adam has had an off day today, he seems to be fighting something and it's hard to tell just what it is because he's been on antibiotics for over a week. Adam had a difficult time in speech today, and also in physical therapy. Erin noticed that his eyes were bouncing quite a bit today which is a sign that he is dizzy so the doctor ordered more fluids with potassium and that seemed to help, his eyes are no longer bouncing and seem to be looking better than they did this morning. When it came time to occupational therapy, Becky worked with Adam from his bed, she worked on standing and stretching. Please pray for Adam tonight, please pray that the sleep he gets tonight will bring healing to his body. Pray that his body will be able to prepare for therapies tomorrow.

Psalm 18:1 I love you, LORD, my strength.   God truly has been my strength, hope, and joy, holding me up and carrying me in the palm of His hands for the last 7 months and I know he will continue to be and do so.  I will continue to trust in Him, trust in His promises, hold onto His truths, and know that He is in control.  I vow to continue to stand by my man and cheer him on every second of every day.  I  love my man and I am so blessed that he chose me, that he cherishes me, and that he shows his love for me every day.  My man is a precious gift from above.

Tuesday, December 14, 2010

Thankful for God's Comfort and His People

So I had a thought... Instead of sending a Christmas card, I would like to send a photo card that you can put on your fridge all year long to serve as a reminder to pray for Adam everyday.  So if you would like one, please send a self addressed, stamped envelope (the card measure at 4X8) and I will send you a "Root For Adam" card.  Send it to Adam at Spaulding, the address is on the left sidebar.  Please allow 2 weeks for delivery.  Please only send one, if you will use it as a daily reminder to keep Adam in your prayers.

Adam and I have been honored and blessed by getting to know another patient and his family.  His name is Gary and his wife's name is Holly.  You can read about his story at http://www.caringbridge.org/visit/garyparrett.    He and Holly came to Adam's room today, laid hands on him and prayed for him.  What a blessing and an honor.  I met Gary yesterday when he was out in the hall, I knew then that he was praying for Adam, I don't know how to describe it, but I just knew that he was in the hall watching Adam's speech therapy session and praying the whole time.  When I walked out into the hallway he asked if he could pray for Adam and with us, God is so good!  I later learned that Gary is a professor at a seminary and has served years as a pastor. The few times I have been able to talk with Gary and Holly, I have felt so encouraged, God is so faithful, and I am so grateful for how he provides and takes care of us.  Please join me in praying for Gary's full restoration. 

Gary and Holly Parrett

2 Corinthians 1:3  Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.  Praise the Lord that He gives us comfort in our time of need, and I pray that Adam and I will be able to be a comfort to others.  I am giving thanks and praising God for the comfort that Gary and Holly have received from our Savior and brought to Adam and I.

Overall Adam had a good day, he is still fighting quite a bit of discomfort from his stomach issues, but that seems to be getting better.  In speech today Stacie was working with Adam to copy the noises she was making, he did awesome, Adam wants to talk so badly... please keep praying for his speech and language.  In physical therapy Erin worked with Adam on the walking machine, the way that the harness straps him in around his stomach, he was pretty uncomfortable, but he still managed to persevere and walk... my man is amazing, GO ADAM!!!  In occupational therapy Emily who is filling in for Becky... made Adam reach up and grab a bean back then reach forward and place into a basket, he did this three times and did a fantastic job!  Adam works so hard every day and inspires me immensely to persevere through what ever pain of grief I have, to know that God gives us His strength to keep going forward one step at a time!

Thank you all for praying for Adam's stomach ache the last several days, it does seem to be getting better with every passing day and I know it's because you all have been faithfully been praying for him.  We are so blessed to have you all praying for us, encouraging us, and walking the journey with us.  You all have taught me so much about what it means to be apart of the body of Christ... thank you.

Monday, December 13, 2010

God's Word Brings Healing

The Word of God brings forth healing... Romans 10:17 "So then faith comes by hearing and hearing by the word of God."  Faith for healing comes by hearing God's Word concerning healing. Just as you may be taking medicine two or three times a day, do the same thing with the promises in the Word of God regarding healing, and allow God to grow your faith.  Today while reading the Word to Adam, he was intently listening every time I would stop he would turn his head towards me and look at me.  I know he finds comfort in God's Word, and I believe God's Word brings healing.

Adam had an okay day.  He had a great speech therapy session.  We took Adam out of his room and worked with him on using the switches to communicate as well as using one of the switches set up as a mouse so he could control my laptop.  He did awesome, I am so proud of him!  In physical therapy Erin worked with Adam while he was standing in the standing frame her whole session, today was the best day he has done holding up his upper body.  He is getting stronger and stronger every day!  In occupational therapy she worked with Adam by stretching out the muscles in his back and neck.  He has a difficult time moving his head from center to the right so by stretching him and massaging him she was hoping it would help relax him.

Adam is still fighting an upset stomach, so please be praying for him.  He has to finish the cycle of antibiotics he's on because he only has a couple more doses, so it's too late to switch without the potential of causing more problems.  He finishes one antibiotic tomorrow and the other he finishes on Wednesday.  Then it will take about 48 hours before they are out of his system and he should start to feel better.  Please pray that we don't have to wait that long before he feels better, but that relief will come soon. 

Sunday, December 12, 2010

So Thankful For Purposeful Movements

Adam cracked me up today as I watched him with his hospital bracelet. It started to come undone and it started annoying Adam so for the next couple of minutes, he picked at his bracelet and took it off. I am so thankful that every day I see productive, purposeful movements. I am so thankful that I see God's hand at work healing Adam day by day, neuron by neuron. Jeremiah 33:6 "I will bring health and healing to it; I will heal my people and will let them enjoy abundant peace and security."  Everyday I am trusting in God's promises and believing in His healing hands to restore Adam.

It has been a rainy, stormy, day here in Boston.  It has made for a fantastic indoor family day.  After church this morning Mackenzie and I camped out for the day in Adam's room.  We played board games, did some puzzles and of course some arts and crafts (Mackenzie's favorite thing to do).  We had the Christmas music going throughout the day... it was so much fun.  We had a great day.

Adam is starting to feel better, he looks better to me today than he has the last 3 days. Today Adam rested well. When he was awake we sat his bed up and moved the tray table over his bed and played where he could see us. I put the game piece into his hand so he could feel like he was playing too.



Mackenzie and I playing a board game!

Saturday, December 11, 2010

My Man Still Holds Me

Tonight will be a short update...

Adam is still not feeling so well, so he rested for most of the day.  He did have physical therapy today, and Saturdays are always short sessions so she just worked him beside.  She was working on building strength in his legs and she would put Adam's leg over the side of the bed and he would pull it up.  I can't believe how strong he is getting, he's doing great.  He has even gained 8 pounds back out of the 78 he lost, I think it's muscle he's gaining back! 

Mackenzie and I worked climbed up onto Adam's bed this morning and pulled the tray table over and worked on several puzzles, we had such a great time.  After Adam finished therapy we walked to the department of health because they were giving free flu shots, and I figured that this year should be my first flu shot since I live in a hospital and I don't want to carry anything to Adam.  Mackenzie and I spent the rest of the day hanging out with Adam.  Like I mentioned last night, I just want him next to me... so this afternoon, I climbed into bed with him and asked him to hold me, and he opened his arms out to reach to me and then pulled me into him.  I think he knew I needed him to hold me.  I love my man!

 Mackenzie in front of Spaulding Rehabilitation Hospital, or what we refer to as home.

 Mackenzie and I 

The Charles River is in Spauldings backyard.. if you look closely you can see that the top layer is ice... brrrrr.

 Getting my first flu shot, when I think about how many shots Adam has had, this is nothing.

Tonight I am falling asleep knowing that God is my comfort, and it's His comfort that sees me through each and every day.  2 Corinthians 7:6 God, who comforts the downcast... God comforts us when we are down, when we are feeling less than encouraged.  He is there for us, with us, and all around us.  

Friday, December 10, 2010

There Will Be A Day

This morning on my way to the hospital all I could think and praise God for was "there will be a day", the day will come when Adam is restored... there will be a day. Revelation 21:3-4 And I heard a loud voice from the throne saying, “Look! God’s dwelling place is now among the people, and he will dwell with them. They will be his people, and God himself will be with them and be their God. ‘He will wipe every tear from their eyes. There will be no more death’or mourning or crying or pain, for the old order of things has passed away.”  I have been learning the last several weeks, that my focus should be heaven bound, as much as all I want is just to have my husband back and this excruciating pain gone, that's not the goal... the goal is becoming more like Christ through the circumstances we have been given, and having our focus be heaven bound.  When I set my hopes and dreams only on Adam's recovery I become anxious and worried about what is to come because that is what I am living for in that moment, but God calls us to a much higher calling, to look to Him beyond our circumstances when I keep my focus heaven bound, there is joy, hope, and excitement for what is to come... because I can't even fathom what heaven must be like.

Please pray for Adam, his stomach was really bothering him today.  Dr. Chae consulted with the infectious disease doctor to change his antibiotic that he is on, this should help, but will take 48 hours before Adam will feel relief.  Adam is so sensitive to medication changes so please pray that the antibiotics they switched him to will do their job and not cause any more issues anywhere else. Also his surgery for his granuloma (granulated tissue) is scheduled for January 3rd, so please be praying for this upcoming surgery to be Adam's last surgical procedure.

Adam did awesome today following commands in speech with Stacie, I am so proud of him for how hard he works.  He is so close to forming words, he's trying so hard and you can hear it in the tone of his voice that he is trying to repeat the word back to you... he is so close.  In physical therapy he did the walking machine again and did well, his right side is getting stronger every time he gets on there.  Praise the Lord for so much progress in Adam's recovery.  Adam was only able to do half an occupational therapy session today and he did great sitting on the edge of the mat all on his own. 

Today has been a day that I am just missing Adam so much.  I wish so badly that he was here laying next to me in bed or at least under the same roof as me.  I want to walk next to him and hold his hand, I would love to sit next to him and have his arm around me or his hand on my knee.  I would do anything to hear him say the words "I love you"... I miss my husband, my best friend, my man... tears.

Thursday, December 9, 2010

Another Great Day To Rejoice In

One of my favorite reminders comes from Psalm 118:24  "The Lord has done it this very day; let us rejoice today and be glad." We seek the Lord for His blessings, prosperity, and success. But true discipleship is focusing NOT on the blessings of the Lord, but on the Lord of the blessings!  We can rejoice in our blessings, but let’s not dwell on them! Let’s set our eyes on the Lord and the calling He has for us. When He sees that we have pure and willing hearts, He will be faithful to use us to accomplish His glorious plan!  Lord, please help me daily to set my eyes on You, make me Your disciple.  Where there is pride in my heart, tear it down and rebuild it with humility, teach me to focus Lord on You and You alone.  Thank you Father for all that You have done already, all that You are doing, and all that is yet to come.  I rejoice in today, thank you for the blessings that You have given us this day.  I love you, and it's in Your holy name I pray... Amen.

In case you can't already tell, I don't reread what I wrote, this blog is a place I release all my thoughts from the day and lay my day to rest.  It's the last thing I do before I shut my eyes at night, it's a release, it's therapeutic, it's my outlet... so I am so sorry for the sentences that might not make sense and for all the grammatical errors.  Thank you all for taking the time to read and pray for us... we are so blessed by you all walking this journey with us.

With that said... let's move onto Adam's awesome day!!!  Adam started his day pretty sleepy today, he didn't sleep well last night because he had an upset stomach that kept him awake.  I think I mentioned last night that the antibiotic that Adam is on for his trach is causing his upset stomach.  It seemed to get better as the day went on, but in the morning he reached down and was pointing at his stomach and when I asked if it was hurting he nodded yes.  Today in physical therapy, Erin had Adam in the walking machine, Adam did awesome!!!   He walked the farthest and fastest yet.... and guess what, his left side didn't need any assistance!!!  He's so strong!  He's amazing.  He tracked really well with his eyes today, going to the right is difficult for him and he was doing really well initiating moving his eyes and head to the right! 

In occupational therapy, Becky was out so Lori filled in.  She brought Adam a ring toss game.  He had to place the rings onto the pole.  He did awesome!!!  He reached up and grabbed the ring from Lori's hand, then he stretched his arm forward to put the ring on the pole and he let go!!!  It was so funny, after about 3 he let out the biggest sigh because he was working so hard to concentrate!  GO ADAM!!!!  Please be praying for Adam's time in speech therapy, I think he's bored and needing a really good challenge, because he just hasn't want to engage Stacie too much.

Adam's parents have been in town for the week and are heading back home tomorrow, so please pray for them, I know leaving is so very hard for them. Also pray for safe travels. Tonight was a good time, they took Mackenzie and I out to dinner, Jack and Cookie could not believe I had never had lobster so we had a lobster dinner, it was so fun... here are a few pictures from our evening.



 Jack, Cookie, Me, and Mackenzie
 Jack getting ready to dig into his dinner
 Doesn't it look like he's saying "eat me"?
Mackenzie, Cookie, Jack, Me, and Adam's cousin Cameron and his wife Parveen (they live in Boston)

Wednesday, December 8, 2010

Endurance To Keep Running

The late Adrian Rogers who has always been one of my favorite pastors to listen to, I could listen to him preach all day every day... he wrote the following:

Running With Endurance
“Except a corn of wheat fall into the ground and die, it abides alone: but if it die, it brings forth much fruit.” John 12:24   You can tell the size of a Christian by what it takes to stop him. Hebrews 12:1 says we are to “run with patience the race that is set before us.” And this word “patience” is not used in the sense that we use the word. It literally means “endurance.” Everybody knows that a runner is going to win or lose primarily by his endurance. You cannot quit. When it hurts, you cannot quit. When your lungs are on fire, you cannot quit. When your feet feel like lead, you cannot quit. When your sides ache, you cannot quit! You’ll never be a spiritual athlete if you’re a quitter! No pain. No gain. Thank God for His power that enables you to run the race and gain the victor’s crown!

I am thankful tonight that it's His power that enables us to not just run the race, but that gets us out of bed to face the race every morning... Amen?!!!  When it hurts I know I can keep going because I am not alone, when the pain feels unbearable and too much, I know God is carrying us through this... I loved this reminder today and I hope you will find your strength in through the Savior to keep running your race.

Adam had another appointment today for his trach.  Dr. Song, let us know that Adam has an infection in his trach called Tracheitis, which is inflammation of the trach.  The antibiotics and steroids that Adam was started on Monday should help with this, he was also given a new trach while we were there and he seems much more comfortable.  However, this evening, after mentioning to Dr. Chae that Adam's stomach is upset he said that the antibiotic that Adam is on causes it.  So tomorrow if his stomach is still upset then he will the infectious disease doctor and come up with a new antibiotic.  Please pray that Adam's stomach will feel better, because he is so sensitive to medication changes I would hate to go through another change.

Adam was uncomfortable for most of the day today and was having some difficulties.  I think his stomach was bothering him most of the day.  He did have an awesome day in physical therapy with Erin, he sat on the table holding himself up without holding onto the table, he was able to do this for 45 seconds!!!  He also tried to pull himself into the wheelchair today and buckle himself!!!  He's amazing!  He rode the bike again and was able to ride and pedal himself for 9 minutes, then it was time to go, so Erin asked him to stop and he did all on his own.  He was having problems stopping last week and did awesome today!!!  I am so proud of him and how hard he works.  He is so strong and getting stronger and stronger everyday.  In the last week we are seeing Adam have so much purposeful movements in his legs and arms, it's been so awesome to watch Adam endure this race and keep fighting to recover,  praise the Lord that He walks before Adam every moment of the way.

Tuesday, December 7, 2010

Giving God So Much Glory

Giving God glory allows us to celebrate daily at the works of His hand, giving God glory allows me to be intentional of what He is doing moment by moment.  In Psalm 96, all earth is summoned to give glory to God. When Christ completed His work on earth, He entered into His glory in heaven. Clothed in robes of majesty and crowned in glory, the beauty of holiness is personified in Christ Jesus... we are all called to give God glory and if we are intentional about it, we will see there is plenty to discover just how awesome our God is and to Him all glory is due!

Adam and I came together this evening and gave God glory for the day!  What a miraculous day we have had!  Adam's day started with speech therapy, I talked with Stacie and shared my concerns, I explained that I think Adam needed a challenge from her.  I haven't seen Adam respond to Stacie like he has his other therapist.  However, Stacie is awesome at what she does and is an incredible advocate for Adam so I know it's not her... I just believe Adam is tired of doing the same things over and over that he has shut her and needs a challenge.  She instantly started thinking of what she could do, she asked Adam's interests and then she asked to borrow my laptop... she let Adam have a switch and every time he hit it we clicked a new picture on the laptop.  Adam did awesome at this, he was checking out every picture!  Stacie decided since he's doing so well with the switch that it's time for him to be evaluated by the department at Spaulding called ATEC, they help determine the best methods that Adam can use to communicate.  So next week he will most likely be evaluated for that!!!

Adam's day only got better... next he was in physical therapy with Erin... he started by sitting on the therapy mat and when I say sitting I mean sitting all by himself unassisted!!!  Erin's goal was for 30 seconds, but Adam likes a good challenge and blew her goal way out... he sat for over 2 minutes!!!  My man is incredible!  Next, Erin raised the map so his feet we dangling.  She rolled a beach ball to him and Adam kicked it back, he was stopping the ball with his feet and kicking it back to her!!! This was incredible to watch.  He must have kicked the ball back to her 20 times or so!!!  He is gaining strength back in his legs, I love it... praise the Lord for answered prayers and miracles!

His day kept getting better... in occupational therapy Becky set a tennis racket next to Adam's side, he reached over for it, picked it up and Becky through a balloon in the air and had Adam hit it with the racket, not only did he hit, but he moved his head and eyes to watch where the balloon was going!!!  This was amazing!!!  He was so alert and awake for all his therapies, I am just giving God the glory tonight for granting me the desires of my heart and answering prayers... GO ADAM!!!

It gets better... since they started the antibiotics yesterday Adam seems to be doing better, so they decided to recheck his respiratory pressures to see if he would be able to tolerate his speaking valve on his trach, which has been off for almost a week.  His numbers were perfect and the valve went back on this afternoon!!!

After therapies Adam was pretty alert and awake this afternoon so we spent some good time together.  I showed him pictures, asked him questions, it was wonderful being in his arms talking to him.  All day today I was getting really good responses with head nods for yes and no's!  This evening I asked Adam if he knows he's my man and he shook his head no, but looked at me funny, so I asked him if he just wanted to hear me say that he's my man and he shook his head yes.  I love my man and his sense of humor!!!

One incredible today, I am giving God all the glory for the miracles that took place today.  God is so good and He is so faithful... so worthy of all our praise, honor, and glory.  1 Chronicles 16:29 "Ascribe to the LORD the glory due his name; bring an offering and come before him. Worship the LORD in the splendor of his holiness."

Monday, December 6, 2010

No Surgery Yet...

It has taken several days, but Dr. Chae was finally able to get in touch with Adam's ENT doctor Dr. Song... after discussing Adam's trach issues, Dr. Song informed Dr. Chae that what it sounds like is happening is Adam has inflammation around the site of his granuloma (granulated tissue).  He said he would not operate on Adam until the inflammation went down, which could take a couple of weeks.  For now they are going to treat it with steroids and an antibiotic.  We have an appointment with Dr. Song on Wednesday and I should be able to find out more details about how long till Adam is able to have the surgery.  Once again I am reminded that it is His timing and not mine.  Isaiah 64:4 "Since ancient times no one has heard, no ear has perceived, no eye has seen any God besides you, who acts on behalf of those who wait for him."  His timing is perfect, and while I would love Adam to have his surgery tomorrow, I am choosing to trust in God and His timing, I love the promise that God acts on our behalf when we wait... talk about serious motivation to be patient and wait, know that God will act on my and Adam's behalf, it sure does make it easier to wait this out and trust in Him!  God is so faithful and His love does endure forever... praise the Lord!

Please pray in the mean time that the inflammation will decrease quickly.  Please also pray for Adam to be comfortable in the meantime, as he has become more aware he is becoming more uncomfortable.  He went through quite an episode this afternoon where he was very upset and inconsolable, he kept grabbing for his trach.  After not being able to talk to him and get him to calm down, Adam looked at me and opened his arms and stretched them out for a hug... so I climbed into bed with him laid my head on his chest and just talked to him, he started to hold me and rub his fingers through my hair, and he calmed down.  Yes, my man loves me so much and I love him!  To keep Adam from pulling out his trach when I am not here he will have to wear restraints.  Please pray that he will continue to emerge from his coma and as he does pray that he will find comfort in God's peace that surrounds him.

Adam had a good day in therapies, he was alert and awake for speech and physical therapy.  He had some sleepy moments in occupational therapy, but overall did great.  Stacie (speech) worked with Adam some more with switches and buttons, she is really working hard to establish a solid yes and no from Adam.  He doesn't like to nod for her.  He will nod and shake his head for me, Erin (physical), and Becky (occupational), but he doesn't do it for Stacie, not sure why but I am working on trying to figure it out.  Physical therapy, Erin worked with Adam on standing and finding balance, he is getting strong every day!  Becky (occupational), did some exercises with Adam and then had him pedal the arm bike.  He made it around ten times!  Again, he is getting so strong, I am so proud of him for how hard he is working!

Tonight the three of us, Adam, Mackenzie, and I are hanging out together.  It doesn't matter what our family time looks like, what matters is that we get family time and that we are a family, praise the Lord I have my man and my kiddo, I am one blessed girl!

Sunday, December 5, 2010

So Grateful

One thing daily that I am discovering... my circumstances will only ever be as good as my perspective.  Choosing to be grateful daily, is just that... it's a choice.  A choice I wish I could say I have made every day, but I know that's not true.  Some days are easier than others.  One thing is for sure, the Bible is clear, even though it is difficult to hear. Paul says, "Be joyful always; pray continually; give thanks in all circumstances, for this is God’s will for you in Christ Jesus." (1 Thessalonians 5:16-18). The words are hard but we need to wrestle with them. This is a tough verse for many people,  
  • for someone who has lost a spouse/or like me dealing with the grief daily of a tragic accident
  • for the person who had a miscarriage of a baby they wanted badly
  • for the person who's body is devastated by the treatments they are receiving
  • for the person who feels they are barely "existing" in the Nursing home
  • for the person who is overwhelmed by financial demands
  • for the person who has to helplessly see their child suffer
  • for the person who lives with a cloud of depression over them
  • for the person who recently stood at the fresh dug grave of someone they love
  • for the person who feels suffocated by their loneliness
In each of these cases, the idea of "giving thanks" is very difficult. In fact, it's not just difficult. It seems impossible. Praise God that He loves us so much that He protects us from seeing the whole picture before we are ready and capable of handling it.  I am so grateful for a God who is working beyond my current circumstances... Amen?!!!  David said we should give thanks because, "the LORD is good and his love endures forever; his faithfulness continues through all generations." (Psalm 100:5) This teaches us that we are to give thanks to affirm, trust, and celebrate the character of God.  I am giving thanks for the Savior who made hope possible. Giving thanks for God's plan to save us. Giving thanks for the baby in the manger, the teacher on the hillside, the Savior on the cross, the resurrected Lord, and the coming King. Giving thanks for Jesus in every circumstance because He is our reason for hope. It is faith in Him that has made us new. It is faith in His provision that brings us eternal life.  No matter what you're facing there is joy to be found, I challenge you to be intentional in looking for the joy and giving thanks that God has given you only what you can handle at this time.

Tonight I have so much to be thankful and grateful for.  My man loves me!!!  Today I asked Adam if he wanted a kiss and he lifted his head off his pillow to kiss me and then he smiled, how sweet... he shows me every day how much he loves me!  I am so thankful for how much more aware and alert Adam is, alert enough to kiss me and smile at me.  Praise the Lord for all that He has done, and is doing!!!  Adam did a great job communicating with head nods today.  Tonight when I was leaving, I asked him to pray with me and he nodded yes, as we finished praying I explained that it was time for me to leave, I asked him to dream about me tonight and he nodded his head yes...  I pray that the Lord gives Adam sweet dreams tonight.


Mackenzie had a busy day today, she was able to participate in all the pediatric events today.  She helped paint and decorate the cafeteria windows with a group of volunteers, then a youth group from a local church came to the pediatric unit and made stockings with the kids and brought games, and a tree to decorate.  It was such a blessing to have such wonderful events inside the hospital that she was able to participate in.  This made me very appreciative for all the hospital volunteers,  Thank you to all the hospital volunteers.

Adam's brother Brad and his mom are in town it's been fun visiting with them.   We all went for a nice walk this afternoon and this evening shared stories it was so enjoyable listening to Cookie share about what it was like when she was dating Jack and listening to stories about the boys as they were growing up.  It was fun recalling memories that we have all shared together. 

Specific Prayer Requests For This Week...
  1. Pray for Adam's surgery to be done sooner than later, his trach is really bothering him and he keeps trying to pull at it.
  2. Pray for a speedy recovery, pray that this surgery would propel him forward and not hinder any progress that has been made
  3. Pray for Adam's muscle tone, he seems to be in some pain and is very tight
  4. Pray for Adam to stay alert and awake during his therapies and for most of the day
  5. Pray that Adam will be able to talk soon
  6. Pray that Adam will continue to make huge gains in the area of processing.  (he's already doing amazing)
  7. Pray for everyone who is involved with Adam's care, pray for wisdom and discernment in making decisions regarding his treatments
Thank you all so much for praying for us regularly, we cannot do this without all of you.  You all have been an inspiration to me and a blessing to my family.  I am so thankful and grateful for all of you.

Saturday, December 4, 2010

Starting The Day In Prayer!

The weekend therapy schedule at Spaulding can get tricky because staffing is quite a bit less on the weekends so anytime that Adam makes the weekend therapy schedule I rejoice and give thanks.  Therapy is not something I take for granted.  Last night when I left he was scheduled for afternoon therapy, but when I got in this morning to bathe Adam and get him dressed and ready for his day, I double checked the therapy and he had been switched to a morning session.  By the time I realized this, I only had 40 minutes to get him bathed, dressed, and up in his wheelchair, normally this takes me anywhere between an hour and two hours.  So I had to be speedy.  I told Adam I had to bathe him quickly and he nodded yes, he was ready to help.  He gave me a funny look and I was trying to figure it out for a bit... I explained to him that we were a team and I asked if I was being too rough, since I was flying to get him ready, he shook his head no but still looked puzzled. 

Finally it hit me... I always start Adam's day by grabbing his hands, saying good morning, and we pray together.  So when it hit me in the middle of his bath that I hadn't done that yet, I stopped, grabbed his hands, and asked him to pray... he shook his head yes and smiled.  As soon as we closed our prayer Adam was much more peaceful and the puzzled look disappeared.  James 5:16 "Therefore confess your sins to each other and pray for each other so that you may be healed."  Starting our day off in prayer has always been important to Adam and I, I could see today for Adam it is still important, praise the Lord that Adam is so alert and aware to know that he wants to start his day offering a sacrifice and renewing his mind.  After praying we quickly finished and Adam made it in time for therapy!

Since we worked fast to get him ready, that was a lot of stimulation for him that by the time therapy started Adam was pretty tired.  The occupational therapist who worked with Adam today, Michelle, played a game of catch with Adam... Adam did awesome!  After therapy we went back to his room and Adam woke up, so I took this time to give him a longer therapy session.  We worked with the switch and Adam did great turning it on and off.  We also worked on some flash cards where he was able to nod his head yes and shake his head no appropriately.  He's doing fantastic!  We played with Plato for a few moments and I was able to read to him for a bit... we worked hard for almost 2 hours then his parents came for a visit and his mom bought him a special air hockey kind of thing that he can play on his tray table... He did pretty good, he engaged wonderfully and concentrated on the puck... he did great.  The he was pretty tired so I got him back to bed and he slept most of the afternoon. 

Please pray for Adam's upcoming surgery.  Also pray that he would be comfortable until then.  He is really struggling and uncomfortable, he has been trying to pull on his trach quite a bit today.  So please pray that he can tolerate his trach a little while longer.  We still don't have an exact time or date of his surgery, but I know the doctors are trying to get him in Monday or Tuesday.

After reflecting on the day, and Adam this morning... I just encourage all you to start your day off praying and watch how God will reveal himself to you throughout the day.  That is my prayer tonight for all of you, that as you begin your day in pray that God would then reveal himself to you throughout the day.

Friday, December 3, 2010

Lifting My Hands To Praise Our Healer

So we had a storm blow through and must have messed up the internet last night... I'm sorry I was unable to give an update... so I am going to start with yesterday...

Yesterday...

Adam had some trouble breathing in the morning and after doing some tests, the doctors and respiratory therapists concluded that when Adam went for his appointment on Wednesday for his trach, they ran a scope down to check the granulated tissue, and in the process they irritated the site which caused it to swell and resulted in closing a good portion of Adam's airway.  So he was having so much difficulty that they had to remove his Passy Muir valve (The Passy-Muir speaking valve is commonly used to help Adam speak more normally. This one-way valve attaches to the outside opening of the tracheostomy tube and allows air to pass into the tracheostomy, but not out through it. The valve opens when Adam breathes in. When Adam breathes out, the valve closes and air flows around the tracheostomy tube, up through the vocal cords allowing sounds to be made. This allows him to breathes out through the mouth and nose instead of the  tracheostomy.)  So we don't want this to take him backwards so Adam's will most likely have his surgery to remove the granulated tissue on Tuesday. 

Please be praying for Adam, pray that this will not be a setback, but instead a push forward.  Pray also that he will be able to have his trach removed in this procedure, or right after.    What else can I do, but trust that God has Adam in the palm of His hands.  When I trust completely, then I can worship God, who is bigger than Adam's brain injury and has plans for a future... plans for good.  So join me in lifting your hands to the heavens and thanking Him for the healing that has occurred, Adam has already defied so many odds, praise the Lord!!!  Worship Him, not because we are called to, but because HE is SO worthy of our praise and worship.  Lamentations 3:41 "Let us lift up our hearts and hands to God in heaven".


Please keep praying that Adam ability to stay awake and not be so sleepy, pray that he has drive, and passion to keep going forward in his recovery.  Please pray that he continues to emerge from his coma.  Again, this is a slow process, yet Adam is making great gains, it's because of your prayers so please keep praying!

Today:

Adam had a great day today.  In speech with Stacie, Adam continued to work with a switch and every time he would hit the switch music would turn on.  The goal is for Adam to see that he can control an object by hitting the switch and then maybe be able to turn this into a form of communication.   Adam did great today giving me head nods when I would ask him questions.  In physical therapy today he worked on the walking machine again... this was the best he has done yet!!!  He walked the farthest and fastest yet!!!  He is gaining muscles and strength back with every step!  He is amazing!  He truly is gaining muscle back, this week he actually gained weight, he's getting stronger and better every day!!!  In occupational therapy Becky was able to get Adam to hold onto a railing and he was able to stand for a few seconds on his own! 

Adam is incredible, I am so blessed by how hard he works every day.  This afternoon, I was sitting on the foot of his bed while he was resting and he woke up, looked for me, I asked him if he needed something and he shook his head yes then took his finger up to his lips and pointed to them (I always do this to him when I am asking him for a kiss), I asked him if he wanted a kiss and he shook his head yes!  He asked me for a kiss, how sweet, he sure knows how to romance my heart and soul!  I love him!  There is so much hope and joy in this journey, we are so blessed... God is so good!

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