Confession... what I write on this blog, is usually what God is teaching me and what I am going through and I am not claiming to have figured it all out. Last night, after writing about how God protects us, I left the hospital in the wee hours of the morning and I found myself feeling like I didn't want to go, and Adam wouldn't be taken care of the way I feel he should. I was totally, stressing, and worrying... and then gently I was reminded that God's protection was not just for me, but Adam too... God is with Adam and has never left him, nor will he leave him. I had so much peace when I was reminded that God is protecting Adam all the time. Praise the Lord, that God is with him even when I cannot be. Psalm 91:1 & 2 "Whoever dwells in the shelter of the Most High will rest in the shadow of the Almighty. I will say of the LORD, “He is my refuge and my fortress, my God, in whom I trust.”"
Mackenzie and I were able to get in and out this morning at the children's hospital. We are still awaiting results, and one thing I have learned... no news is good news. She has still been taking it easy, but seems to be doing better today than yesterday. She and I spent the day and evening with Adam, we had a great day and Mackenzie was even able to participate in Adam's physical therapy session. Mackenzie also had her playdate with her friend on the pediatric floor. The girls, along with Spaulding's child life specialist did all sorts of arts and crafts. Both girls had a good time.
Please pray specifically for Adam's muscle tone, he seemed really tight to me today. He goes through days when he feels more tight, and other days he is really loose. I ask that you all pray for him specifically for his muscle tone to relax, and for Adam to be comfortable. Adam did well in therapies today, he was pretty tired this morning during speech therapy, and yet we were able to see some great swallowing. Dr. Chae increased Adam's neuro-stimulant so hopefully that will help him be more alert for therapies. 2 weeks ago when Adam had his seizure, he had to go on an increased medication dose of an anti seizure medication and most anti seizures cause drowsiness. So we have been fighting all the medication changes. As I mentioned before, Mackenzie was able to participate in his physical therapy session, they used a football and played catch. It was so cool that Mackenzie got to participate, she loved it!
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