So, you have read that over the last several days that I have been worried about Adam's swelling. On Friday I noticed a decline in Adam's alertness and was concerned because I began to see an increase in swelling, so I talked with Adam's doctor and he ordered a CT. CT showed no bleeding so he was happy. By Saturday his left side of the brain where he has no skull was completely swelling out the side of his head. Sunday I asked the doctor to come and look at Adam, when he did he decided he needed to compare Friday's CT to one that he had done at UNC. All day Monday we waited for UNC to cal and they never did. Yesterday (Tuesday) morning when I got to the hospital the doctor was on the phone with UNC and that's when they noticed a new fluid collection on Adam's right side of his brain. The Neurosurgeons at UNC decided it was in Adam's best interest to come back to UNC so that they could take a closer look, monitor Adam and come up with a plan of action.
While all of this was going on Adam was scheduled for a endoscopy at WakeMed because he has had so many issues with his G-Tube and they were trying to figure out why. When the anesthesiologist came to look at Adam for the endoscopy he said he would not do the surgery because Adam was too unstable. At this point Adam's G Tube was bleeding and pulling up blood and blood clots. This all got put on hold because Adam's brain swelling was a larger issue.
I was able to ride in the ambulance with Adam, and when we arrived he was taken into CT right away. The attending doctor took me to his office and showed me Adam's CT scans, the one from Friday a previous one from 8 days before that and the new one. Adam had a significant amount of fluid collecting on his right side and still increasing on the right. There is also a membrane that has developed around the fluid on the left side. The doctor told me that none of these symptoms seem to be related and none of them see to have any rhyme or reason. The doctor said he has no idea right now what is going on with Adam, he said to me Adam has been one big puzzle since his initial arrival (I think this is evidence that God is working on Adam).
An hour after arriving Adam was in surgery to externalize his VP shunt so they could see how much fluid he is draining. The doctors are concerned that Adam is draining too much fluid, but the only way to tell is monitoring his drainage is to externalize it and watch it. So that is where we are. No matter what they decide about his drainage because they externalized his shunt this commits us to at minium 2 more operations. Right now I am at Adam's side and he seems to be resting peacefully.
I am waiting for the critical care team doctors to come by and figure out what they are going to do about his G-Tube. We are possibly looking at another surgery today for them to fix what's going on there. Right now he is on IV fluids and they are pushing his medications through via IV so he's not using his G-Tube... so once again we are waiting for answers.
Being able to give thanks and focusing on what I am thankful for has continued to help get me through this time. I know I have mentioned this verse before, this helps me to focus on what I am thankful for rather than just begging God to heal Adam...
Philippians 4:6 "Do not be anxious about anything, but in everything by prayer and petition, with thanksgiving, present your requests to God."
Today I am thankful that I know Adam well enough to know something wasn't right and that I was able to be his voice when he can't. I am thankful that Adam received the medical attention he needed in a timely manner. I am so thankful for the nurses and doctors here in ICU that we already have working relationships. I am thankful that he is in good hands here. I am thankful that Adam has been opening his eyes this morning. I am thankful he is resting. I am thankful that I have had so many people praying. I am thankful for those who have been walking this journey with me, both by my side and those who are in prayer for us. I am thankful that I know Adam's faith is strong. I am thankful for the faimly God has blessed me with. I am thankful for those who have had Mackenzie and loved on her when I haven't been able to. I am thankful that my God is so big and mighty to heal. I am thankful that my God overcame death for me. I am thankful for Adam and the blessing he is to me everyday. I am thankful.